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5 things any newly diagnosed type 1 should know

Discussion in 'Type 1 Diabetes' started by Juicyj, Jul 4, 2020.

  1. Lynnzhealth

    Lynnzhealth Type 1 · Well-Known Member

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    At this time, COVID, it's very difficult to see a counsellor and our mental health support group closed down in 2019, just when we really need it. I guess it's just one day at a time. Thanks and take care.
     
  2. AlisaFrost

    AlisaFrost · Newbie

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    Great article. Actually, I don`t suffer from diabetes but my dad has type 1 and this is information could be useful for him. Thank you for this information
     
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  3. Lynnzhealth

    Lynnzhealth Type 1 · Well-Known Member

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    I'm glad your sister has your support, DanutaMorks. I have to say with all the ups and downs that my latest A1C was 7.1. YIPPEE! As long as it keeps going down I'm happy. I have to get back to reading Dr. Bernstein's book because things slip through the holes in my memory. And, I have been eating more protein and that helps a lot. A funny thing, though. I'm not sure if anyone else experiences this, however when I do heavy exercise, like shovelling, my BG goes up. I can walk along with my dog at a less strenuous pace and it goes down. I have been feeling better this past month, so that's a good thing. Good luck to all in this journey. Stay safe and stay well.
     
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  4. Juicyj

    Juicyj Type 1 · Expert
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    Hello @Lynnzhealth

    It depends on the exercise for me too - digging or mowing drops me like a ton of bricks but a steady run for 40 mins keeps me flat. It’s best not to have any quick acting insulin onboard when you do more strenuous activity or have a carby snack beforehand and stop every 30 mins to test and check, exercise is good for mental well-being though so always make sure you have a plan before you do anything so you are prepared.
     
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  5. ArsenalCath

    ArsenalCath Type 1 · Member

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    Since being diagnosed with type 1 and having insulin injections I gave put in a phenomenal amount of weight. I’m blaming the insulin as my Carb Manager app says I very rarely go over 1000 calories a day. I need to lose weight as it is making me thoroughly miserable. I hate having diabetes type 1. I’m seriously considering not eating carbs and not having insulin. I know what will happen as before diagnosis I was hardly eating anything as food tasted foul but my weight was good. Then diagnosis, but my blood glucose is rarely within range it’s nearly always high so have to have large doses of insulin. I have spoken to my diabetes team so often but I still don’t understand what the hell is going on with my rotten body..
     
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  6. ArsenalCath

    ArsenalCath Type 1 · Member

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    If we are advised to nit have fast acting insulin before exercise as exercise reduces our glucose levels what is going on? If our body doesn’t produce insulin how does the glucose get into our cells without insulin? I just don’t get it.
     
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  7. Lynnzhealth

    Lynnzhealth Type 1 · Well-Known Member

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    I totally understand how you are feeling. I was first (mis)diagnosed as Type 2 when I was 69 in 2017. I totally changed my lifestyle (Keto) and managed to keep my A1C in the normal range and blood results were great, with no meds and no insulin. Suddenly, without warning, I went into a Diabetic Ketoacidosis episode and ended up in the ER in bad shape. There I was given the specialized test and I turned out to be T1 at 71. Unbelievable. I went through every emotion imaginable and had to learn everything all over again. Because the hospital doesn't understand just what diabetics should be eating, it totally threw me back into my old ways. It took me at least 9 months to get back on track. Now, I'm following a very low carb, protein, veggie way of eating. Trust me, many times I want to throw in the towel, too. I did not realize until just recently (nearly 73) just how badly it affected me for the past two years. I do have ups and downs with BG, and it boggles my mind. I find if I eat more protein my BG is better. My last A1C had come down from 7.6 to 7.1. Needless to say, my Diabetic Educator told me that that's a good range for me. No, I don't think so. I follow Dr. R. Bernstein's diabetes solution, other doctors who also have diabetes and know my A1C can be lower than that. She also doesn't like the Keto/low carb way of eating. I shake my head sometimes that the health professionals still think the old way is good. I can't believe the number of people I see where I live that follow their way and end up with amputations, heart problems and kidney dialysis and then die young. That is not for me. I only have one kidney and can't afford to tamper with that. My DE also told me not to worry about complications because they won't happen for probably 20 years. I couldn't believe she'd say that. If I eat carbs like she suggested my BG shoots up very high and it's hard to get it down. So, I don't do what she suggested. I also cook and bake following the Keto/low carb recipes in Dr. B's book and online from other followers of his and low carb lifestyle. It is definitely a roller coaster ride, however, I am learning what I need to do to keep me safe. Especially when I'm walking the dog, doing yard work or shovelling snow, etc. I also have data sheets where I keep track of readings before and after meals and the amts of insulin I take for each. That really keeps me on track. I was prescribed the glucose monitor/sensors because of my age, I suppose. I LOVE it. I really, really hope that you can figure out what you can eat or not eat and continue to take insulin. You need that to survive, being a T1. You are not alone here, although many days it sure feels like it. Take care and I hope you can figure out what you need to do. HUGS!!
     
  8. Juicyj

    Juicyj Type 1 · Expert
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    Hi Cath - insulin is a hormone which regulates the glucose in the body, exercise improves insulin sensitivity and if you have too much quick acting insulin in your system and start exercising then you are absorbing the glucose in your system and which puts you at risk of going hypo, so it's best to exercise without quick acting insulin on board. Your basal insulin covers your bodies needs as a background insulin, it's quick acting insulin which poses a problem if you're exercising.
     
  9. Juicyj

    Juicyj Type 1 · Expert
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    Hi Cath,

    At the point we receive our diagnosis our bodies have been starved of energy for some time, it's difficult to say how long in your case but I know when I was diagnosed i'd lost well over a stone in weight and once I started insulin therapy my body adjusted and I put on weight, I started on a pump a number of years afterwards and put on some more then, I have since taken up running and run around 2-3 times a week so have converted some of that to muscle but haven't lost any weight, I eat a low carb diet and control my glucose levels as tightly as I can, I do this for a couple of reasons, firstly to improve my mental health, as i've found running high glucose levels made me depressed, where as if I can run a tighter range I am more focused and feel more relaxed, I sleep better which again impacts my mental health. Eating food doesn't need to be a pain, but getting used to food which has a better outcome on our blood glucose levels is my goal, can you use a libre at all to watch the impact of food on your glucose levels ?

    If you're levels are running high then you're not getting enough insulin, what will help as a starting point is to just keep a daily diary so recording the times for your blood glucose levels, food eaten/carbs consumed, insulin taken. Identifying patterns is key to getting better control, as you can show your team what you are doing, when and they can help you make adjustments. In time it's good to develop your knowledge and understanding more to help you make decisions.

    I know at the moment things seem hard and you hate your t1 but you have to learn to live with it, so reaching a point of acceptance so it can exist without emotion, sadly it's not going away but running high will be making you feel rubbish so hopefully use the diary to start seeing what's happening, when etc and you can start to bring your levels down with the right insulin dosing.
     
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  10. LionChild

    LionChild LADA · Well-Known Member

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    Well, Lynnzhealth,
    Snap!!
    I am now 69, and I was also misdiagnosed with Type 2 in 2019. I also ended up with DKA and was rushed into hospital. I am also on low doses of insulin and on LCHF, and my last A1C was 47. But like you sometimes my BG goes high nevertheless. I am on the Libre flash glucose monitoring, and have just moved onto Libre 2 which has an alarm built in, but is presently reading very high for some odd reason I think. Yesterday morning it was 12.1. It has not been this high since I was first diagnosed so I am shocked.
    I also struggle with depression and anxiety and a mood disorder! We seem to be in very similar situations?!
     
    #30 LionChild, Aug 5, 2021 at 8:09 AM
    Last edited: Aug 5, 2021
  11. LionChild

    LionChild LADA · Well-Known Member

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    One thing that comes to my mind is that I try to ensure my BG is around 6 mmols before having any meal. If it is higher, if I can, practically, I will wait it out until it goes down a bit. Lunch for example I would usually have around 12, but there are times when I have postponed it as late as 14.00. That is of course not always practical, but if I can I do postpone. For Low Carb regimen, as I am on (mostly), I usually only have 1 unit a few minutes before eating. My basal at this time is 4 units. I think a minimum of animal protein works for me, particularly in the evening. If I have too big a portion of say, salmon, I find my BG can go rather high over night. I am working my way through Bernstein too!
     
  12. LionChild

    LionChild LADA · Well-Known Member

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    I did read somewhere that exercise that involves weight living, for example, dumbells, can make BG go up, whereas walking or running makes it go down. I find that interesting!
     
  13. EllieM

    EllieM Type 1 · Moderator
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    Sometimes T1 blood sugars can be unpredictable (eg illness, fault with insulin or pen, stress, overuse of injection site,...) but I would also strongly recommend that you double check your sensor result against a glucometer if you are surprised by the result. They can be inaccurate.
    There is also the possibility that if you were only diagnosed in 2019 you are still producing some of your own insulin, and that amount has recently gone down.
     
  14. Trevor vP

    Trevor vP Type 1 · Well-Known Member

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    I find what you say about animal protein at night really interesting.

    I have noted the exact same and I thought I was just missing something else. Thank you for sharing that.
     
  15. Lynnzhealth

    Lynnzhealth Type 1 · Well-Known Member

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    We do seem to be. I'm going to check my family tree to see if we're related. lol I don't think I'm getting enough insulin, and I think I'm out of the honeymoon phase. My last A1C was 6.8 and my DE wasn't very happy. She thinks because of my age, etc, that it should be higher. Nope, because that's when complications start. I might be 73, but I still don't want to lose any limbs or have heart problems or whatever. She also does some algorithm thing and has me on such low doses that I go high if I look at food. I don't understand why she does that when she sees the records I keep. It proves that the low doses do not work anymore. She said I keep records better than anyone else she deals with. So why can't she understand? I would rather have a DE who actually has T1D so that they know exactly how we feel on this rollercoaster. So, I adjust my insulin depending on how high my BG is before meals. And, I've found out this summer that humidity and T1D do not play nice together. I walk the dog early, however, I've had to cut the walks short because my BG plummets quickly. I carry chocolate and dexcom with me. Thank goodness I have the Libre Freestyle monitor so I can check my BG when I'm out and about. And, I have to cut the grass or weed when it's not quite so humid. It bugs me that the things I could do in one day I now have to divide up. Of course, age might have something to do with that. I cooked some chicken breasts and steak in my air fryer this morning to wrap and freeze for meals. If I don't do that I don't eat enough protein. I'd rather sweets. My BG still shoots up sometimes after meals for whatever reason. My first reaction is - what the HECK?? However, I'm slowly learning not to panic. I hope both of us can get as good a handle on this as we can so we can live a longer, healthier life. Take care and stay safe.
     
  16. LionChild

    LionChild LADA · Well-Known Member

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    Yes, I had a similar problem with the DE actually encouraging me to let the BG go UP after meals and not worry. Well, like you, I want to avoid complications later if I can, so I have also been quite meticulous about keeping BG records. Since going onto Libre 2, which indicates higher measurements than my Finger Prick results, and finding on the first morning after the new sensor that my BG was 12.1, I panicked. I cannot remember my BG ever being as high as this since I was first diagnosed in 2019! so I have upped my Levemir to 5 units each morning. One Consultant said categorically that I simply would NOT have complications because I was controlling my BG so well....Yet now I realise that Libre 1 was very much underestimating my levels! The medical professionals do not yet seem to understand the peculiarities of Libre, and I suppose it is up to the patients to teach them! They did not seem to appreciate or believe me when I told them it was under-estimating my BG....
    Yes, I find too that I have to limit, and organise my day according to how my BG is doing, and what I eat. I have salads most of the time, and that means I can keep BG in reasonable order, but if I have a ready meal - twice a week usually, just for variety ---, then I have to monitor it much more closely as it tends to shoot up or down and is quite unpredictable.

    Also, like you, I am learning not to panic, especially recently with these , for me, anyway, very high readings - in the 9s 10s, and one 12. My last A1C was 47 which I was disappointed with as Libre 1 told me I was 40, so add 7! This was frequently the case in the differential. I could not understand why the disparity, but now it becomes clearer that Libre 1 was reading low, as now, Libre 2 is reading High. So for my next A1c, hold your breath!!
     
  17. LionChild

    LionChild LADA · Well-Known Member

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    Yes thank you. I agree. But it's rather odd don't you think that that rise in BG should exactly correspond to the change to Libre 2?
     
  18. LionChild

    LionChild LADA · Well-Known Member

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    Yes, I had read that protein won't have dramatic effects on BG, and that it's digestion being slower, helps, but I have found that if I have say, an average -even, portion of fish with a salad, say, in the evening, BG tends to go up over night quite significantly. I therefore have reduced the size of the portion, and this seems to keep the BG down...
     
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  19. Lynnzhealth

    Lynnzhealth Type 1 · Well-Known Member

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    Goodness, we do sound like we're having the same issues. If I think my Libre is too low/high, I check with a finger prick. Yesterday, my a.m. BG was 8.8, so I dosed 5 of Tresiba (long-acting) and 6 of Humalog. Two hours later it was 4.2 (while I was walking the dog). Then this a.m. my BG was 8.8 again. I knew I was taking the dog for a walk, so I dosed 5 of Tresiba and 5.5 of Humalog. Same exact breakfast as yesterday. Two hours later, my BG was 11. I can't figure out why it does that. So, I did some heavy yardwork and came in and checked, and my BG was 3.1!!! It is slowly going up now. I find it takes longer to get the BG down than it does getting it up. And, I read an article, on here I think, that having the Bariatric surgery makes a difference in the way/speed food is digested. So that affects insulin/glucose. I seriously want my BG to stay within the target range - 5-10. Maybe I'm delusional.

    I'm bad about eating enough protein, but I am doing much better this week. I do like some salads, mostly Chicken Caesar. And, lately I've been having lightheaded spells when I get up from a chair. I just read a post about that on this site today. If I keep doing that I will have to go see my Doctor. If it's not one thing, it's another. T1D certainly keeps one on their toes.

    Some days after all the decisions, the ups and downs and the stress of everything, I just want to crawl in bed, pull the covers over my head and stay there. Alas, I can't because I have a dog and cat and they wouldn't allow it. With that, I better get moving here. It's great talking with someone who is experiencing the same issues. Have an awesome weekend. Stay safe and stay well.
     
  20. LionChild

    LionChild LADA · Well-Known Member

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    Yes, I agree, it's exhausting having to manage blood glucose ! And when you are older, with all the other minor, or even major ailments and illnesses perhaps, it can really be a big strain....Sometimes it has really got me down. I cannot be as spontaneous as I was, everything has to be thought about, planned for, and I have to be vigilant, always. It has got better though, in that I do not now get quite so anxious when bg goes right up or down, as long as I have with me what is necessary, I think, I will be okay. But sometimes I am concerned about later, when maybe I am not quite so competent at dealing with all this.

    Just to say that I usually just take 1 unit of Novorapid (fast acting) insulin when I get up, whatever my reading is and this seems to help bring down what I presume in the Dawn Effect. And very recently the Levemir I have raised from 4 to 5 units as I have already mentioned. I usually aim to have lunch around 12, but do not have any breakfast, just a drink of water. This helps and was recommended by a doctor who himself has Type 1, but is not my medical doctor, just someone I happen to have come across who I can speak to every now and again on the telephone for free....A very kind person, and someone who really seems to know what he is doing with this. Of course he has to take care not to over-reach his status if you see what I mean...? But mostly I cope on my own.

    When my BG went up, I would go on my elliptical machine indoors, and after 10 mins or so of that, it would bring it down fairly predictably, and nicely, but now I find I get too tired to do more than 5 minutes at a time.

    My weight is about 11 stone 10Ibs, and my height 5' 7 ", and I would really like to bring that down a bit, but its now too far out of the BMI range which anyway seems to be discredited so I am not too fussy about that. My BP has been very variable, and maybe more of concern when it goes to 145 systolic, but yesterday it was a happy 118. I understand that if BP is variable, that can be more indicative of CVD issues than simply a BP that is quite high like above...? All these aspects seem to be important as a whole, regarding a person's health...

    I do get very tired these days. How about you? It is great to be able to share like this, particularly when we seem to have so many similar characteristics!! :)
     
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