5 things any newly diagnosed type 1 should know

Lynnzhealth

Well-Known Member
Messages
159
Type of diabetes
Type 1
Treatment type
Insulin
Just a quick one, thanks for the info and good job with the diabetes. Why do you think the doctors think it's ok to have a higher a1c after 50? Never made sense to me to change anything if it was working?
Hi Nai Nai: Congratulations! You've had a long road and looked after yourself along the way. Very good question. I was first dx'd at 69 with T2. I freaked of course. They put me on Metformin, however, that didn't work for me. I researched and found Dr. Richard Bernstein's book "Diabetes Solution" and followed his low-carb way of eating. Things were great except the GP and Diabetes Educator were against a low-carb way of eating...despite my great A1C and blood results. Then at 71 I had a bad DKA episode which landed me in the hospital for four days. Turns out with the proper tests I was actually T1. It's been up and down ever since. I want my A1C to be in the 5 zone again, however, medical folks want it around 7 because of my age, now 76. Dr. Bernstein has been T1 since around 1935, then decided at 45 to become a doctor...to study diabetes and how he can help. He is now 89 or 90...my point being...if he can live that long with the A1C of a normal person without diabetes, why can't I, not to mention others? I get so frustrated that I sometimes eat things I know are not good for me...hence the ups and downs. My own fault. I have been a carboholic since my teens and I sometimes falter...not much, but enough. Then I get so angry at myself. It's a vicious circle...that I'm still trying to conquer. Good luck on your journey.
 
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SHORAN

Well-Known Member
Messages
57
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
Strong smells, poor customer services, long queues, rubbish food, being fobbed off.
Lynnzhealth,

Hello,

Have you spoken to a diabetic nurse / consultant who knows what are talking about ? ( you must have ? )

Being a T1 . I assume you have two types of insulin to take ?

1)A fast acting insulin - you take just before each of your meals ( called the bolus ) usually at a ratio of usually 1 unit per 10g carbs you are going to eat . This ratio varies for different people ( mine is 1 unit per 7g carbs I eat during the day and the ratio changes for my evening meals to 1 unit per 6g carbs) This insulin can also be taken after your meal ( like you forgot to take some INSULIN before eating, or you did eat and you did inject but your levels went higher say 2-4 hours after eating to what is deemed acceptable for T1 DIABETICS this as far as I am aware being 9-10 mmol/L . This is called a correction dose. The ratio for this differs again for different people. For some its 1 unit per 5mmol/L over , for others like me its 1 unit for every 3 mmol/L over ( example I've injected for a meal , carb counted etc. 2-3 hours later Im reading at 16mmol/L, I'd do a correction for this my correction ratio is 1:3, so I'd take 2 units to reduce my level by 6mmol/L, but usually for me unless it goes pretty high as in more than 15, two or three hours later I won't bother doing a correction , I'd just wait till my next meal. I'd then see what my levels were like before my meal and as well as doing injections for that next meal ( as in carb counting and ratios for this ) I do a bit extra insulin for correction because I was a bit high before the meal - I hopeI havent confused you too juch ! )

2) The slow acting / background insulin ( called the basal ) usually taken once or twice daily . Lots of people just do one injection at night.
Others like myself do it at night and first thing in the morning. Once thisis figured out. ( it takes some time ) This amount doesn't vary on a daily basis.
It is imperative to get this dosage correct and requeires various testings , trials and errors to get the right dose. Once this is determined as being the correct amounts - only then your bolus insulin ( for the food ) will work much better and correctly. Very important. Figure this out and half the battle is won . It took me ages to figure out mine ( often getting hypos as well as many hypers ) I'm still not 100% I've got it spot on ! ( this is 6 months of insulin regime )

Get yourself a CGM ( continuous glucose monitor ) it helps you track things and your phone or receiver can alert you to upcomong highs or lows and you can adjust for this ( like having a sweet drink for hypos etc ) or if your going too high often - you can note this etc ( drink some more water , try excercise a bit to get the numbers down again )
Its very helpful to keep a detailed diary of what you ate , what bolus insulin you took at what time and what your readings were 2 hours later and what it was before the next meal.
This helps you figure our first and foremost if your background insulin amounts are correct or not ( too little basal , you will keep getting highs even with a sensible carb counting ratio when using fast acting insulin , conversly if your basal intake is too high your going to get hypos and your fast acting insulin ( for your food ) feels too strong / effective.


You said " I will have an occasional treat, but make sure I dose for it, although I'm not sure how one does that"
You look at the treat and work out it's carb value ( there are books / nutrition guides that illustrate all this info, pr look at the packaging of the food it sometimes tells you )
Lets say your basal levels are correct and you've ascertained for example the carb counting ratio for you ( bolus / fast acting insulin ) is 1 unit per 10g of carbs . Say the treat ( a cake etc ? ) is 30g of carbs . That would be 3 units of bolus insulin ( 30g divided by 10 = 3 ) to take for that.
Ideally you'd take this usually 10-15 minutes before you eat it.

Good luck. Keep your chin up.

Shoran .
 
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