5 things any newly diagnosed type 1 should know

Lynnzhealth

Well-Known Member
Messages
159
Type of diabetes
Type 1
Treatment type
Insulin
Just a quick one, thanks for the info and good job with the diabetes. Why do you think the doctors think it's ok to have a higher a1c after 50? Never made sense to me to change anything if it was working?
Hi Nai Nai: Congratulations! You've had a long road and looked after yourself along the way. Very good question. I was first dx'd at 69 with T2. I freaked of course. They put me on Metformin, however, that didn't work for me. I researched and found Dr. Richard Bernstein's book "Diabetes Solution" and followed his low-carb way of eating. Things were great except the GP and Diabetes Educator were against a low-carb way of eating...despite my great A1C and blood results. Then at 71 I had a bad DKA episode which landed me in the hospital for four days. Turns out with the proper tests I was actually T1. It's been up and down ever since. I want my A1C to be in the 5 zone again, however, medical folks want it around 7 because of my age, now 76. Dr. Bernstein has been T1 since around 1935, then decided at 45 to become a doctor...to study diabetes and how he can help. He is now 89 or 90...my point being...if he can live that long with the A1C of a normal person without diabetes, why can't I, not to mention others? I get so frustrated that I sometimes eat things I know are not good for me...hence the ups and downs. My own fault. I have been a carboholic since my teens and I sometimes falter...not much, but enough. Then I get so angry at myself. It's a vicious circle...that I'm still trying to conquer. Good luck on your journey.
 
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SHORAN

Well-Known Member
Messages
57
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
Strong smells, poor customer services, long queues, rubbish food, being fobbed off.
Lynnzhealth,

Hello,

Have you spoken to a diabetic nurse / consultant who knows what are talking about ? ( you must have ? )

Being a T1 . I assume you have two types of insulin to take ?

1)A fast acting insulin - you take just before each of your meals ( called the bolus ) usually at a ratio of usually 1 unit per 10g carbs you are going to eat . This ratio varies for different people ( mine is 1 unit per 7g carbs I eat during the day and the ratio changes for my evening meals to 1 unit per 6g carbs) This insulin can also be taken after your meal ( like you forgot to take some INSULIN before eating, or you did eat and you did inject but your levels went higher say 2-4 hours after eating to what is deemed acceptable for T1 DIABETICS this as far as I am aware being 9-10 mmol/L . This is called a correction dose. The ratio for this differs again for different people. For some its 1 unit per 5mmol/L over , for others like me its 1 unit for every 3 mmol/L over ( example I've injected for a meal , carb counted etc. 2-3 hours later Im reading at 16mmol/L, I'd do a correction for this my correction ratio is 1:3, so I'd take 2 units to reduce my level by 6mmol/L, but usually for me unless it goes pretty high as in more than 15, two or three hours later I won't bother doing a correction , I'd just wait till my next meal. I'd then see what my levels were like before my meal and as well as doing injections for that next meal ( as in carb counting and ratios for this ) I do a bit extra insulin for correction because I was a bit high before the meal - I hopeI havent confused you too juch ! )

2) The slow acting / background insulin ( called the basal ) usually taken once or twice daily . Lots of people just do one injection at night.
Others like myself do it at night and first thing in the morning. Once thisis figured out. ( it takes some time ) This amount doesn't vary on a daily basis.
It is imperative to get this dosage correct and requeires various testings , trials and errors to get the right dose. Once this is determined as being the correct amounts - only then your bolus insulin ( for the food ) will work much better and correctly. Very important. Figure this out and half the battle is won . It took me ages to figure out mine ( often getting hypos as well as many hypers ) I'm still not 100% I've got it spot on ! ( this is 6 months of insulin regime )

Get yourself a CGM ( continuous glucose monitor ) it helps you track things and your phone or receiver can alert you to upcomong highs or lows and you can adjust for this ( like having a sweet drink for hypos etc ) or if your going too high often - you can note this etc ( drink some more water , try excercise a bit to get the numbers down again )
Its very helpful to keep a detailed diary of what you ate , what bolus insulin you took at what time and what your readings were 2 hours later and what it was before the next meal.
This helps you figure our first and foremost if your background insulin amounts are correct or not ( too little basal , you will keep getting highs even with a sensible carb counting ratio when using fast acting insulin , conversly if your basal intake is too high your going to get hypos and your fast acting insulin ( for your food ) feels too strong / effective.


You said " I will have an occasional treat, but make sure I dose for it, although I'm not sure how one does that"
You look at the treat and work out it's carb value ( there are books / nutrition guides that illustrate all this info, pr look at the packaging of the food it sometimes tells you )
Lets say your basal levels are correct and you've ascertained for example the carb counting ratio for you ( bolus / fast acting insulin ) is 1 unit per 10g of carbs . Say the treat ( a cake etc ? ) is 30g of carbs . That would be 3 units of bolus insulin ( 30g divided by 10 = 3 ) to take for that.
Ideally you'd take this usually 10-15 minutes before you eat it.

Good luck. Keep your chin up.

Shoran .
 
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Melgar

Moderator
Staff Member
Moderator
Messages
1,580
Type of diabetes
Other
Treatment type
Tablets (oral)
Hi and welcome to the forum @Nilparma . I'm glad you are finding the forum helpful. If you haven't already you may wish to look at some of the posts in the children, teens, parents and young adults section. There maybe some useful information there too. I note there hasn't been much activity for a year or so, but the discussion groups are there. If you go into forums and scroll down you will see the section. Of course, the T1 discussions groups here are very helpful too.