That sounds like a strange existence indeed.Thank you. Nothing much has changed. I am thinner, slower and still can't eat. I am being kept as comfortable as possible. It's a strange existence, like I am not really alive anymore.
It makes me think of my dad, who was tube fed during the last 6 months or so of his life, and on ever increasing doses of morphine. Life was still very much worth living for him during that time, but I also think it was different, a transitioning period.
He had moved to my place in the middle of nowhere from Amsterdam, and the GP asked him how he liked to have moved.
His reply was that it was too quiet around here for living, but a very good place for dying, and he was happy to be here.
I don't think anyone can truly understand what it's like to be this ill unless they've been there, but I truly hope being kept as comfortable as possible makes things doable for you during this strange existence.
Thank you for replying, for us you're very much alive!