Are there any type 1 diabetics here in remission?

[Billy Barroo]

Are there any other type 1 diabetics on here that are still able to produce their own exogenous insulin and have gone into remission? I used to inject 56 units of insulin per day before starting a high saturated fat, moderate protein, zero carb strict carnivore diet.

 

[HSSS]

Type 1 don’t go intro remission that I have ever heard about and short of a transplant I have never heard of a cure.

What I have heard of is a type 1 not actually being type 1 at all but a misdiagnosed type 2 all along. Or a misunderstanding what type 1 actually is (ie it’s not just based on being on insulin as type 2 do use this too). Or even a short term honeymoon for a type 1 when changing to a very low carb diet if they have a little insulin production left for now.

How long have you been diagnosed? Who by and how were you identified as type 1, not 2?

It looks like great news for you but I suspect there’s something other than type 1 remission going on here.

 

[Billy Barroo]

I was diagnosed Type 1 December 2019 when I was rushed into the Queens Medical Centre, Nottingham, with DKA. My diabetic consultant and diabetic team are still advising me to stop carnivore, eat the standard UK diabetic diet and continue injecting insulin. I stopped injecting insulin on 26th July 2021. If I start consuming low carb or even high amounts of protein my blood glucose levels increase and that would mean having to start injecting again. There are many others type ones that I know of that are still in remission. One of them is a type 1 diabetic for 13 years. She is off all medication and now runs her own carnivore group. Not all type 1 diabetics need to inject exogenous insulin, there are some that are still capable of producing their own residual insulin.

 

[Antje77]

Honeymoon period can be long sometimes.
I hope you'll be able to continue for much longer, if you're doing well on this diet.

 

[bulkbiker]

before starting a high saturated fat, moderate protein, zero carb strict carnivore diet.

Is that like the PKD protocol?

https://www.paleomedicina.com/en

 

[Billy Barroo]

Is that like the PKD protocol?

Is that like the PKD protocol?

Yes, it's the Paleo Ketogenic Diet. The strict carnivore version.

 

[Billy Barroo]

I tried to post a link but I'm still not allowed yet, even though I've posted more than 3 posts.

 

[Fenn]

I am once again eating strict keto, my insulin use has gone so low I started to think I could stop insulin until I have tried to cut out my basal completely, this has been a huge failure and now I’m proper struggling to get things back on track, my beautiful straight libre lines are now more like an ecg


edit, too many edits, I really should keep my nose out

 

[Billy Barroo]

I am once again eating strict keto, my insulin use has gone so low I started to think I could stop insulin until I have tried to cut out my basal completely, this has been a huge failure and now I’m proper struggling to get things back on track, my beautiful straight libre lines are now more like an ecg

So my advice for any one that fancies trying to eat their way into remission, you can’t! Well it didn’t work for me anyway lol

I couldn't go into remission on paleo or the keto diet. I still had to inject insulin. I only managed to come off it 3 months later on a strict carnivore diet. I could post some links proving that type 1 diabetics can eat their way into remission if I was allowed to post them on here.

 

[Rokaab]

I could post some links proving that type 1 diabetics can eat their way into remission if I was allowed to post them on here.

After 45 years of being a T1 with no insulin production this is just not going to happen for me.

Whilst newly diagnosed T1's may be able to stave it off for a while, I doubt it would last forever

 

[Billy Barroo]

After 45 years of being a T1 with no insulin production this is just not going to happen for me.

Whilst newly diagnosed T1's may be able to stave it off for a while, I doubt it would last forever

Rachel Chalmers, a type 1 diabetic for 13 years is still in remission. Check out her "NZ" Carnivore group. I'll post some links about type ones 50 years after they were first diagnosed that are still producing insulin when I'm allowed. Dr Richard Oram, of the University of Exeter Medical School, who led the study, said: "It's extremely interesting that low levels of insulin are produced in most people with Type 1 Diabetes, even if they've had it for 50 years.

 

[HSSS]

I was diagnosed Type 1 December 2019 when I was rushed into the Queens Medical Centre, Nottingham, with DKA. My diabetic consultant and diabetic team are still advising me to stop carnivore, eat the standard UK diabetic diet and continue injecting insulin. I stopped injecting insulin on 26th July 2021. If I start consuming low carb or even high amounts of protein my blood glucose levels increase and that would mean having to start injecting again. There are many others type ones that I know of that are still in remission. One of them is a type 1 diabetic for 13 years. She is off all medication and now runs her own carnivore group. Not all type 1 diabetics need to inject exogenous insulin, there are some that are still capable of producing their own residual insulin.

I’m curious what a carnivore diet without too much protein actually looks like. It sounds mostly fat. How do you get all your nutrients or do you supplement? Do you enjoy such a diet? Is it worth to avoid insulin?

 

[AndBreathe]

Rachel Chalmers, a type 1 diabetic for 13 years is still in remission. Check out her "NZ" Carnivore group. I'll post some links about type ones 50 years after they were first diagnosed that are still producing insulin when I'm allowed. Dr Richard Oram, of the University of Exeter Medical School, who led the study, said: "It's extremely interesting that low levels of insulin are produced in most people with Type 1 Diabetes, even if they've had it for 50 years.

Surely producing insulin per se and producing adequate insulin to maintain normal life are very different.

(Normal life is very subjective, especially for those of us who consum modified diets.)

 

[Billy Barroo]

I’m curious what a carnivore diet without too much protein actually looks like. It sounds mostly fat. How do you get all your nutrients or do you supplement? Do you enjoy such a diet? Is it worth to avoid insulin?

For me it's worth avoiding insulin. No more hypos, no cravings, no more injections. My last hypo was on the 11th March 2021. Yes, I eat mostly saturated fat. 2 meals a day. I try and keep to an 80:20 fat to protein ratio and make small adjustments in the ratios by monitoring my glucose and ketones numbers.

 

[Billy Barroo]

Surely producing insulin per se and producing adequate insulin to maintain normal life are very different.

(Normal life is very subjective, especially for those of us who consum modified diets.)

I'm still producing adequate insulin to maintain normal life on a high fat zero carb diet.

 

[HSSS]

For me it's worth avoiding insulin. No more hypos, no cravings, no more injections. My last hypo was on the 11th March 2021. Yes, I eat mostly saturated fat. 2 meals a day. I try and keep to an 80:20 fat to protein ratio and make small adjustments in the ratios by monitoring my glucose and ketones numbers.

And the micronutrients? Organ meats etc contain many but if you are restricting proteins where are these coming from

 

[Billy Barroo]

And the micronutrients? Organ meats etc contain many but if you are restricting proteins where are these coming from

Muscle meats, organ meats (nose to tail) eggs and saturated animal fats, salt and water. That's all I need, Carbs are not essential. protein and fat are.

 

[EllieM]

@Billy Barroo
have you had a cpeptide test recently?

There was a very interesting study done in Scotalnd where they tested cpeptide on all their long standing T1s

https://onlinelibrary.wiley.com/doi/10.1111/dme.14449

and found that 13% had significant levels of cpeptide.

Serum C-peptide testing was performed in 859 individuals (90% of the eligible cohort), of whom 114 (13.2%) had C-peptide ≥200 pmol/L. The cause of diabetes was reclassified in 58 individuals (6.8% of the tested cohort). The majority of reclassifications were to type 2 diabetes (44 individuals; 5.1%), with a smaller proportion of monogenic diabetes (14 individuals; 1.6%). Overall, 13 individuals (1.5%) successfully discontinued insulin, while a further 16 individuals (1.9%) had improved glycaemic control following the addition of co-therapies.

So a small but significant (specially if you are one of them) number of T1s do get misdiagnosed...

The other question I have is what happens to your blood sugars when you get ill? Do you have to worry about DKA or do your bgs stay low?

The more I read about diabetes the more I find out that people's metabolisms are different, even when they have the same "Type", but I'd want to be very careful about promising an insulin free existence to more than a very few (possibly misdiagnosed) T1s.

 

[Goonergal]

And the micronutrients? Organ meats etc contain many but if you are restricting proteins where are these coming from

Take a look at the Twitter account of Zsofia Clemens on Twitter @ClemensZsofia - interesting stuff.

Personally I do much better with very fatty proteins in terms of blood sugar levels and weight management - ruminant meats over chicken/pork.

 

[Billy Barroo]

@Billy Barroo
have you had a cpeptide test recently?

There was a very interesting study done in Scotalnd where they tested cpeptide on all their long standing T1s

https://onlinelibrary.wiley.com/doi/10.1111/dme.14449

and found that 13% had significant levels of cpeptide.

Serum C-peptide testing was performed in 859 individuals (90% of the eligible cohort), of whom 114 (13.2%) had C-peptide ≥200 pmol/L. The cause of diabetes was reclassified in 58 individuals (6.8% of the tested cohort). The majority of reclassifications were to type 2 diabetes (44 individuals; 5.1%), with a smaller proportion of monogenic diabetes (14 individuals; 1.6%). Overall, 13 individuals (1.5%) successfully discontinued insulin, while a further 16 individuals (1.9%) had improved glycaemic control following the addition of co-therapies.

So a small but significant (specially if you are one of them) number of T1s do get misdiagnosed...

The other question I have is what happens to your blood sugars when you get ill? Do you have to worry about DKA or do your bgs stay low?

The more I read about diabetes the more I find out that people's metabolisms are different, even when they have the same "Type", but I'd want to be very careful about promising an insulin free existence to more than a very few (possibly misdiagnosed) T1s.

Insulin 'still produced' in most people with type 1 diabetes. They've known this for decades.​

Insulin 'still produced' in most people with type 1 diabetes

New technology has enabled scientists to prove that most people with type 1 diabetes have active beta cells, the specialized insulin-making cells found in the pancreas. Type 1 diabetes occurs when the body's immune system destroys the cells making insulin, the substance that enables glucose in...

www.sciencedaily.com