Diabetes Burnout.

nomorechoccy said:

I have been getting really fed up, not just with diabetes.

I handed my notice in last week after changes at work made it too stressful, so am now jobless.

It is coming up to the 2nd anniversary of my partners death and as a result of her passing and losing a job have had to move back to Bristol. Leaving the few friends I had behind.

I am finding it so wearing trying to eat well, I miss being able to make a sandwich think I might go back to quack and discuss medication.

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If it helps, here in the US stress can be a factor to qualify for unemployment compensation even if you initiated the separation. Just a thought...

In the line of commiseration: I am retired and living alone. I used to be quite the creative cook. My recipes have become boring, repetitious, and riddled with errors. Now I cannot seem get beyond junk foods.

One thing that has saved my A1c is making a hobby out of my diabetes testing. (nerd that I am...) I am a programmer and designed a software tool to monitor my readings, suggest dose of insulin, and remind me to read/inject. It seems that my drive to test/improve the software is my drive to take readings and to watch blood sugar levels. In the last two blood tests, 3 months apart, I have maintained readings between 6.3 and 6.5 A1c (140-151). In the last 40 years, I have never has that much success.

I guess my point is that being somewhat successful on the diabetes management tool seemed to help me get through the other issues (over weight, losing mobility, becoming a recluse, Trump, etc).

For me, a single focus that gives me a feeling of success went go a long way. I am not saying that it is easy but it can happen.

Gork said:

If it helps, here in the US stress can be a factor to qualify for unemployment compensation even if you initiated the separation. Just a thought...

In the line of commiseration: I am retired and living alone. I used to be quite the creative cook. My recipes have become boring, repetitious, and riddled with errors. Now I cannot seem get beyond junk foods.

One thing that has saved my A1c is making a hobby out of my diabetes testing. (nerd that I am...) I am a programmer and designed a software tool to monitor my readings, suggest dose of insulin, and remind me to read/inject. It seems that my drive to test/improve the software is my drive to take readings and to watch blood sugar levels. In the last two blood tests, 3 months apart, I have maintained readings between 6.3 and 6.5 A1c (140-151). In the last 40 years, I have never has that much success.

I guess my point is that being somewhat successful on the diabetes management tool seemed to help me get through the other issues (over weight, losing mobility, becoming a recluse, Trump, etc).

For me, a single focus that gives me a feeling of success went go a long way. I am not saying that it is easy but it can happen.

Click to expand...

Gork said:

If it helps, here in the US stress can be a factor to qualify for unemployment compensation even if you initiated the separation. Just a thought...

In the line of commiseration: I am retired and living alone. I used to be quite the creative cook. My recipes have become boring, repetitious, and riddled with errors. Now I cannot seem get beyond junk foods.

One thing that has saved my A1c is making a hobby out of my diabetes testing. (nerd that I am...) I am a programmer and designed a software tool to monitor my readings, suggest dose of insulin, and remind me to read/inject. It seems that my drive to test/improve the software is my drive to take readings and to watch blood sugar levels. In the last two blood tests, 3 months apart, I have maintained readings between 6.3 and 6.5 A1c (140-151). In the last 40 years, I have never has that much success.

I guess my point is that being somewhat successful on the diabetes management tool seemed to help me get through the other issues (over weight, losing mobility, becoming a recluse, Trump, etc).

For me, a single focus that gives me a feeling of success went go a long way. I am not saying that it is easy but it can happen.

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Well at least I got off my butt today, walked over 3 miles might go for another one this afternoon. Sun is shining seems a shame to miss it before our summer ends.

Had sausages eggs bacon and tomatoes when I came back but feel hungry again now..

thanks for all your comments I don't feel so bad knowing others have similar issues.

Gork said:

One thing that has saved my A1c is making a hobby out of my diabetes testing. (nerd that I am...) I am a programmer and designed a software tool to monitor my readings, suggest dose of insulin, and remind me to read/inject. It seems that my drive to test/improve the software is my drive to take readings and to watch blood sugar levels. In the last two blood tests, 3 months apart, I have maintained readings between 6.3 and 6.5 A1c (140-151). In the last 40 years, I have never has that much success.

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Is this on a PC or an App?? I find the apps for phones etc are not written/produced by diabetics and they will nearly all miss things out. Maybe it would be worth while you looking into getting this out in the community??? Could be a winner

There are quite a few open source projects connected with monitoring blood glucose, open- and closed-loop control, some on Android.

Quite a few are on Github and Gitter. If you haven't seen them take a look, maybe you could contribute.

Speaking of apps above, the Mysugr app has been the best phone tool I have used to keep track of my bloods on a graph that I can see patterns, leave notes for myself etc, I have had much tighter control through that app.

I am lazy and use a libre when I can afford it. But i get down too over the 24/7 relentlessness of diabetes (mine is t2). I also have chronic fatigue syndrome so got quite down lately with trying to manage both of them.

How to daignose daibetes?? And also what type of daibetes you have.

Hello, I want to know that, how does doctor's determine what type of daibetes you have?
Is there a special test that determines between Type 1 and Type 2?

Caitlin69 said:

How to daignose daibetes?? And also what type of daibetes you have.

Hello, I want to know that, how does doctor's determine what type of daibetes you have?
Is there a special test that determines between Type 1 and Type 2?

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Hi!

Diagnosis is done based on your bloodsugar level and HbA1c, which is the average of 3 months. If numbers are solidly in the diabetic range, you have diabetes. Type can be determined with a C-peptide and GAD test, but most doc's like to skip those as they're expensive and not always really needed. I had PCOS and was morbidly obese, besides having a family history of t2. And when reducing carbs got me into the normal range, that kinda sealed the deal. It's when meds and diet don't work, that they start ordering other tests for T1/Lada/mody/etc.
Hope that helps!
Jo

twisted imaginings said:

thanks for your reply cowboy jim - I appreciate it and will definitely look into the chart...there is just so much going on right now in my life and it just feels like an uphill struggle every day :?

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I'm new to this, so can't offer advice other than what you will get here, however I can recommend the daily chart idea very much ... it works for me anyway on many levels and keeps me on track monitoring medication, blood pressure, exercise etc etc. It can be enlightening to follow your progress and gives you a sense of achievement and/or a target for improvement ... it's nice to detach yourself from your feelings and worries, and consider action plans with your brain ... it's calming, Lots of luck, you are in the right place for real assistance and that's a great first step :smile:

I am no medical expert by any means and i'm not here to tell anyone how to manage their diabetis, however after 5 days in the hospital with what i thought was a sore throat ended up being DKA and luckily not a single bad thing happened to me despite the high numbers and evrything in my body being out of whack i cme out a different person. I found 2 books dy Dr Jason Fung very enlightning and if you read them they may help you out, one is called the obesity code and the other is called the complete guide to fasting, and although it doesn't sound like it he is a diabetis specialist. you don't have to buy the books, i got mine from the library and I cant say it will help you but pills only will never help you get rid of it. He also has a lot of videos on you tube, just give a listen. I honestly don't know why this isn't more wide spread. Give it a read or a listen and i hope this can help some of you, I for one am trying it out, and i know it won't kill me. Good luck and if it helps, spread the word. I hope someone will benefit from this.

Tom

What’s the highest number you hit?

I've hit 660 and I suspect I have been higher, but that is the highest that I recorded.

mynameistom said:

I am no medical expert by any means and i'm not here to tell anyone how to manage their diabetis, however after 5 days in the hospital with what i thought was a sore throat ended up being DKA and luckily not a single bad thing happened to me despite the high numbers and evrything in my body being out of whack i cme out a different person. I found 2 books dy Dr Jason Fung very enlightning and if you read them they may help you out, one is called the obesity code and the other is called the complete guide to fasting, and although it doesn't sound like it he is a diabetis specialist. you don't have to buy the books, i got mine from the library and I cant say it will help you but pills only will never help you get rid of it. He also has a lot of videos on you tube, just give a listen. I honestly don't know why this isn't more wide spread. Give it a read or a listen and i hope this can help some of you, I for one am trying it out, and i know it won't kill me. Good luck and if it helps, spread the word. I hope someone will benefit from this.

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Just to add, Diabetes Code is now available as an audiobook free on YouTube. Dr. Fung has a fair few fans here on the forum.

Heya guys u feel I need a bit of a rant because no one I know is diabetic nor has anyone looked after my illness when I was young and because I have mental health issues the diabetes has plagued my mind, all I keep thinking about is what I'm losing but I can't seem to pick myself up. I know I'm in an difficult relationship but it because we both have adhd and he didn't know. I've got him diagnosed and things are getting better but it's still hard we've been waiting for therapy off the nhs for 4 years I feel it's not going to happen.
Ever since my step dad died when I was 13 I've struggled with my diabetes the people who looked after me couldn't even medicate me right let along feed me correctly or inject me. My insulin wasn't even kept in a fridge I hated my biological father for what he did he love he's drink more then anything and was heavy handed when drunk, i dont know why soical services put me there. there was no heating for water or the radiators. Many times I tried to end my life because I didn't want to be a burden to anymore and after my brother died I just lost my grip on relatity. I suffer with lots of nerve damage now I'm 28 and I don't want to die anymore I want a chance to live a normal life but I've been burnt put for years with my depression. The diabetic team keeps on letting me down and doesn't care and I cannot bare the torture of hospital again, they take take my insulin away and denice me pain relief when I'm giving Oramorph by my doctor because I vomit blood. Please I don't want my story to end like this I'm so scared and don't know what else to do.

@Frannon18 Sorry to hear of your situation, sounds like you've been through a lot.

I can only speak from experience in regards to what I've learnt about managing life with type 1, I was diagnosed late in life and it felt like sailing a boat without a sail or oars, I learned very quickly that I needed to take control and to not rely on anyone other than myself, it meant becoming an expert so I read books, got on any course the NHS offered and got involved in clinical research simply so I could talk to doctors, I also knew that if I didn't master it then it would control my life as it can so easily creep into every aspect of life, if you let it. I have gone from multiple daily injections to pump and continuous glucose monitor, I have knocked my HbA1c down from 64 to 44, I still have background retinopathy, but I refuse to let type 1 stop me from working, running and living as 'normal' a life as possible. It's not perfect there's lots of bumps but I have accepted imperfection and live with it as best as I can, you hear very often people with t1 say I refuse to let it rule my life and that's what I strive for.

Treat each day as a new beginning, don't stress about comparing your life to others or past mistakes or worries about the future, if you learn each day to simply keep within your target range, adjust ratios when you see repeat patterns which are out of range and correct when you see highs, become an expert and sail your boat as if you own it then you can improve control and improve your quality of life. Get a copy of 'think like a pancreas' written by a type 1, also talk daily about your control here which will help keep you focused, try and get your team to get you on Dose Adjustment for Normal Eating (DAFNE) which is a great course regardless of any t1 knowledge you have. Things can only get better, starting today.

I feel your pain. I was diagnosed 8 years ago. I have had every up and down you can imagine. Currently I am on a downward spiral. I think I am depressed due to other factors in my life. The depression has seeped into my diabetic self care. I am scared to death of insulin. I don't feel supported by my doctors, family and most friends. "Just try a bite" I phyically cant just eat a bite. My New Doctors actually said the words "Take insulin or die". I am so tired of all the attention I need to spend on everything. Checking sugar levels, reading labels, taking meds, Doctor appointments, planing meals and snacks. When I take insulin my body retains so much water. In 3 weeks i gained 21lbs. Everything was swollen and painful. My stress makes my blood sugar skyrocket to 300-400. But because my A1C was 7.6 the doctor does not believe me. I tried to hand him my meter but he just told me that my A1C does not reflect those numbers. I want to try other medications but i do not know how to stand my ground with the doctors.
How do you all mentally deal with all this? How do you not throw in the towel and give up?
Marie

I do not know how to stand my ground with the doctors.

Your doctor has a duty of care but so do you ... to yourself. Take it head on, take notes and ask questions, especially here

“Just try a bite” is more about the speaker’s emotional satisfaction and perhaps even self protecting denial, than our health.

It’s difficult to trust a medical professional who doesnt have T1 themselves. I’ve talked to nurses who really have no clue about form function cause and effect of (trying) to live with T1D.
Then again the shame, sadness and self hate is a personal thing.