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Disappointed in advice - Newly DX

Discussion in 'Newly Diagnosed' started by leatrix, Jan 20, 2020.

  1. Resurgam

    Resurgam Type 2 (in remission!) · Expert

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    One of the problems I had eating high carb was my huge waist - I was almost spherical, and when I bent over my liver was so hard and large that it pushed my ribs out - so painful - my dr said it was gallstones...
    Now I can get down to wash out the very bottom of the fridge and get up again without seeing stars - I suppose I have to count that as a positive, though perhaps more accurately it is part of my regression back to what I used to be able to do..
     
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  2. JoKalsbeek

    JoKalsbeek Type 2 (in remission!) · Well-Known Member

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    Oh, and @leatrix , back when you went for ultra low carb (Keto), did you go straight in? Could well be your body would've responded better if you'd taken the carbs down a little slower, over a few weeks time. Don't rule it out for yourself yet. Also, steer clear of artificial sweeteners. (Stevia, Erythritol are fine... Others will mess up your gut something awful.)
     
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  3. TriciaWs

    TriciaWs Type 2 (in remission!) · Well-Known Member

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    I am another who told my GP I wanted to try diet first. I was very obese, had a non-alcoholic fatty liver but my cholesterol was ok apart from triglycerides.

    I was lucky, diagnosed as T2 early and straight onto low carb (100g for a few days then 85G for a year, now back to 100g some days) so I got into remission without any meds.

    In addition, my triglycerides dropped fast on LCHF, and a recent fibroscan showed my fatty liver has resolved, all while eating more eggs and cheese and adding whole milk and cream into my diet.
     
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  4. Sosgez

    Sosgez Type 2 · Well-Known Member

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    I came down from 96 to 34 in a year by just not eating certain things at all, and using Metformin SR. I utterly hated straight Metformin for years, with endless problems. I'm not saying Met SR was useful - I think the dietary changes were more significant. A certain amount of exercise is also pretty useful. It lowers the appetite too. I quite like porridge with 10g of sultanas occasionally. I have portions weighed out in advance. It might not be ideal, but I see it as preventing me from giving in to something much more harmful instead.
     
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  5. jjraak

    jjraak Type 2 · Well-Known Member

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    nice work.

    i agree, (i think the ratio, particularly re trigs is important.)

    My trigs were in the 6's :arghh: (<1.7 recommended) when i first had blood work done in 2011
    no mention of how to reduce or worry about it...the cholestrol was the one they spoke of.

    but eating better if not particularly well for what i suspect was an undiagnosed T2, i got the trigs down to 2.5 over 7 years :wtf:

    but within 6 months i halved them eating LCHF (50/60 g a day)..whoop whoop
    eating the same foods as you...Food that SHOULD have killed me five time over since then
    if i believed all i knew before...:hilarious::hilarious::hilarious:

    and got down to the more modest 1's...(1.2 in fact..well chuffed).
    cholesterol followed suit and now down from high risk to borderline..
    (much less bothered about that now since reading up on it)
    as did my HBA1c..40 at last check up

    well done you on the blood scores..long may it continue.
     
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  6. EllieM

    EllieM Type 1 · Well-Known Member

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    Unfortunately most cereals just have too much carb in them for T2s to tolerate, and that includes porridge. You're much better off with eggs and bacon, or berries and unsweetened greek yoghurt...

    By the way, for future reference, one mg is one thousandth of a gram, so you want to count your carbs in g not mg. (We all know what you mean when you say mg, so it's not really a problem, but my scientific background is bugging me every time you say mg instead of g. :):):)).
     
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  7. leatrix

    leatrix Type 2 · Active Member

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    *lol* Spent most of last night watching a sad programme about twins on Netflix whilst nipping on Instgram and hashtag searching #ketodiet and #ketofood, lots of great recipes popped up; I definitely think I got this! :)
     
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  8. leatrix

    leatrix Type 2 · Active Member

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    Thanks! I did some research last night on the pred link and was astounded at how much pred can cause diabetes. I'm still waiting on the clinic to get back to me (to be fair they did say yesterday or today, I'm guessing their busy), so will almost certainly be bringing it up. Yes, I think, if you're not a regular doctor visitor, it goes under the radar.
     
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  9. leatrix

    leatrix Type 2 · Active Member

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    Wow! No that *is* a turnaround..crikey what a scary time you must have had and to see how you've turned it all around is nothing short of real determination! I do doth my cap! :wideyed: On the plus side, this is very good news for me, as it means I can just concentrate on getting those BS numbers down (6.6 today!) and hopefully the rest will follow. Thank You!
     
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  10. JoKalsbeek

    JoKalsbeek Type 2 (in remission!) · Well-Known Member

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    At the time I was terrified and horrified... I never could have suspected then, that those few terrifying weeks would end up being a hopeful anecdote one day. Now there's a lovely outcome eh! ;)
     
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  11. jjraak

    jjraak Type 2 · Well-Known Member

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    KNOWLEDGE..too much can be bad, but we NEED to know what MAY be going on..
    because i doubt the docs know all the answers UNLESS we ask the right questions.

    10 mins to catch up on who YOU are, talk about whats going AND discuss possible downfalls and outcomes of many things that CAN interact with us..not happening, so forewarned IS forearmed.

    the term General Practitioner says it all.

    WE have to become the experts of US, imho
    if we are to get the best advice and help possible

    is that obsessive..so what..:D

    i could quote L'oreal and say we're worth it...(and we are ;) )

    but i'm more with spock.

    "Live long & Prosper"

    and didn't he always seek more knowledge.?

    after all it's only Logical, captain.:bookworm:
     
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  12. leatrix

    leatrix Type 2 · Active Member

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    #52 leatrix, Jan 22, 2020 at 12:42 PM
    Last edited: Jan 22, 2020
  13. leatrix

    leatrix Type 2 · Active Member

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    Hi there and thanks for posting to me. Sounds like the high carb way of eating doesn't really suit many of us at all. I can well remember the days when I probably knocked back at least 500 carbs a day! Thoroughly enjoyed them too, but all good (bad for you) things must come to an end! :arghh:
     
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  14. leatrix

    leatrix Type 2 · Active Member

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    Yes, I did and I think I got Keto Flu with it, because I felt terrible; I did persevere for some months, but it was just too drastic for me to cope with. I was looking good but spending all my time in the loo, so noone saw my weight loss anyway! :meh::) The slower way I'm doing it now, is definitely better for me, less of a shock to the system and my BS is definitely coming down on the meter too. Luckilly I don't take artificial sweeteners, I tend just not to have the Coke (I'm so missing, but gotta be done!) instead of the diet version.
     
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  15. leatrix

    leatrix Type 2 · Active Member

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    Ooh thanks for replying, this is interesting as I'm trying at 100g for a few days then onto 80g so sounds just about how I'm hoping to tackle the t2 diabetes and delighted to hear it's worked for you, not dropping down to the 20g/30g level I've been reading a lot about on instagram. I'm loving hearing about everyone's fatty livers repairing too, gives me real hope for this year!
     
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  16. leatrix

    leatrix Type 2 · Active Member

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    I have yet to hear back from the clinic (I'm certain they're just super busy) but I told them I'd not started the meds as yet, but totally understand if they want me on them, after me trying the diet, I'll definitely seriously consider it. Sadly, aside from swimming each week, which I love, I have mobility difficulties (joined to my twin sister by the foot, and when they seperated us, it left our feet a bit of of line), so running/walking etc causes me a good deal of pain, but I've already now downloaded a fitness app which allows for an armchair exercises...not better time than the present! Yes, I've noticed if I portion everything out and batch cook it's much easier to stay on plan. Loving that you went from 96 to 34 in only a year though! #inspiring
     
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  17. leatrix

    leatrix Type 2 · Active Member

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    I know! *sob* and *sob* again...you can probably see how I got into this predicament to start with! I'd think nothing of munching on a big bowl of Crunchy Nut Cornflakes for brekkie and then some for supper, it's definitely all my fault I got into this state! Hence why I'm desperate to reform my past habit and ditch the high carb foods. I actually love eggs, bacon, berries etc, so think it won't be as hard as I think it will be. Here's hoping anyway!

    Oh yes, many apologies; don't ask me why I wrote mg instead of g, it's just my muddled brain trying to cram knowledge in all at once! *lol*
     
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  18. JoKalsbeek

    JoKalsbeek Type 2 (in remission!) · Well-Known Member

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    Keto flu isn't supposed to last for months. (Usually a few days up to a week or two, and is relatively easily solved once you know how.) Odds are you were missing something, somewhere... Or your body just got such a jolt from upping the fats it went nuts for a bit. Taking it slow should indeed help. Glad you're seeing results. :)
     
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  19. Resurgam

    Resurgam Type 2 (in remission!) · Expert

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    I was on a diet to reduce cholesterol - so I was told. I hated the foods which were supposed to be saving my life, and had to stop weighing myself as the pounds piled on remorselessly, apparently all my fault for not running marathons at the weekends.
     
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  20. timgil

    timgil Type 2 · Active Member

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    I was diagnosed December 2018 and my first A1C was 122. While I don't think the diabetes nurse I have seen has always given me the best advice - she has not "forced" me into anything and I have clearly (but politely) told her where I disagreed (and why). I am not someone who can "follow a diet" and quickly realised that its a lifestyle change I needed rather than "go on a diet". Initially I was on Glimepiride but then moved to Metformin more recently. To be honest, I felt really bad - and it was no shock that I had T2 - so I was willing to take the Glimepiride to start with. I had more reluctance to take the Metformin as I was worried about the side effects (which never happened for me).

    While I am sure the drugs have made a big difference - I also think my change in eating habits have made more difference and all I have done really is cut down on carbs. Cut out white bread, only have seeded multi grain, and not nearly as much as I used to. I used to eat far too much pastry from Greggs - so I have cut that out mostly (only an occasional treat) and I park my car a good 10-15 mins walk away from work each day.

    Basically I have just changed my diet to "sensible" and I am sure this has had as much effect as the Metformin. My latest two A1c results were 37 in September when I was coming off he Glimepiride and 39 just a few days ago. I was worried it would go up a little coming off the Glimepiride but seems to have been unfounded.

    When I was on the Glimepiride I didn't have too many problems with Hypos. A few times my sugar went down to the low 4's and only one time went to 3.8. I did several have symptoms of hypos but that was in the 5's as my body had been so used to having high sugar (I recorded 27.1mmol/l at once stage just after being diagnosed!). Now, fingerprick tests are often around 5.6 which I am super happy with.

    My advice would be read what you can - learn what your options are - talk to the fantastic people here - listen to your medical professionals and THEN make your own decisions. I have also found that when I had said "no" to the nurse, giving a reason and being prepared to follow this up with a source for why I feel that way... has really helped. In my case I have found the nurse just wants to make sure I am making informed choices. If she can see I have thought about it and have a reason for what I am saying, she accepts that this is my decision and I am informed. She's fine then. Most heal care professions SHOULD be of the feeling that it's YOUR health and YOUR decision and they offer guidance and support.

    Good luck!
     
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