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I just don't know...

addiequince

Member
Messages
7
Location
Essex
Type of diabetes
Type 1.5
Treatment type
Insulin
I really don't know or understand what I can and can't eat. (Newly diagnosed last month, but without actually clarity of what Type I have, Doctors described me as an anomaly)

Been told to avoid sugars, cut out fruit, avoid sweeteners, reduce the carbs, paying attention to carbs which sugar.

But I don't understand what that leaves me with.

I really don't like fish, and I'm a shift worker with very little time to pre-cook food or make things at work.
I'm struggling massively with breakfast suggestions especially on the days when I am at work.

I'm hungry all of the time and just can't get my head around anything at all.

I've read websites, and trawled through this forum, but I still feel at a loss.

Help (please)
 
Hey @addiequince - Welcome to the forum :)

Saying that you're an anomaly isn't particularly helpful, how was your diagnosis picked up ? have you had any tests done to determine what type you are ? Also have you been given a blood glucose meter to test with ? It may be type 2 as generally type 1's are put onto insulin straight away, however the dietary advice is useful regardless if you haven't been prescribed medication yet. Getting you head round what is ok to eat and what isn't takes time, we have some new members information which you will find useful - am tagging @daisy1 for this - also many helpful members who can give you some good tips, also ask away, you don't have to just eat Fish, there's a whole world of food out there waiting to be discovered. What foods do you normally eat ?
 
I really don't know or understand what I can and can't eat. (Newly diagnosed last month, but without actually clarity of what Type I have, Doctors described me as an anomaly)

Been told to avoid sugars, cut out fruit, avoid sweeteners, reduce the carbs, paying attention to carbs which sugar.

But I don't understand what that leaves me with.

I really don't like fish, and I'm a shift worker with very little time to pre-cook food or make things at work.
I'm struggling massively with breakfast suggestions especially on the days when I am at work.

I'm hungry all of the time and just can't get my head around anything at all.

I've read websites, and trawled through this forum, but I still feel at a loss.
Help (please)

Its hard not to feel overwhelmed at first, the likelihood is that you feel really hungry because of the amount of carbohydrates you have been eating ( toast, cereals, ricse , spaghetti, many processed foods, and sweet thins) they all make you appetite worse. When you stop eating them and replace it with real foods your hunger pangs should go down.

It leaves you with ton of stuff, bacon, eggs, meats of all types, cheese, cream butter avocados, nuts , seeds, green vegetables .
basically almost any type of properly fresh instead of processed foods should be ok to eat. Look at the low carb program on here to get some ideas. My builders bring along salads and happily munch them.! boiled eggs and avocados work really well and easy to store.
 
Hey @Juicyj
Thanks for the reply/
It was picked up by my GP, I was experiencing a numb foot and she wanted to rule out diabetes as the cause, and ended up ruling it in. I had Meningitis and Septeceamia in 2015, and had originally thought the numb foot was a result of that, but sadly not.

I had a few blood tests over the last few weeks that they said would help determine the type, but there was some issues with the blood taken and I've had to have them redone.
They're saying I'm an anomaly because of the factors involved. They're saying my age makes me unusual to develop type 2 (I'm 28) but the glucose levels don't appear to be high enough to be type 1.
I've been put on Metformin to start with and they are quite open that I may have to change treatments.
Although, I've not been told about self testing, I don't have a meter and not sure what I'm meant to do about it all.

I've got an appointment next week with a GP that specialises in Diabetes, and I'm hoping that'll give me more clarity.

As for the food, I lived off of rice, pasta, fruit and vegetables. Usually rice and pasta salads etc
I followed Slimming World for a long time, and would do their Overnight oats for breakfast (porridge oats, yogurt with fruit)
 
Its hard not to feel overwhelmed at first, the likelihood is that you feel really hungry because of the amount of carbohydrates you have been eating ( toast, cereals, ricse , spaghetti, many processed foods, and sweet thins) they all make you appetite worse. When you stop eating them and replace it with real foods your hunger pangs should go down.

It leaves you with ton of stuff, bacon, eggs, meats of all types, cheese, cream butter avocados, nuts , seeds, green vegetables .
basically almost any type of properly fresh instead of processed foods should be ok to eat. Look at the low carb program on here to get some ideas. My builders bring along salads and happily munch them.! boiled eggs and avocados work really well and easy to store.

Hi @CherryAA
Thanks for the reply.
I've always had a sweet tooth but always overcome it by eating fruit instead, turns out that's been just as bad for me lol.
I do struggle with cheese, butters and creams. Unfortunatley I also suffer with IBS and find too much diary is absolute agony.

Thank you though, I'll keep experimenting.
 
I had a few blood tests over the last few weeks that they said would help determine the type, but there was some issues with the blood taken and I've had to have them redone.
They're saying I'm an anomaly because of the factors involved. They're saying my age makes me unusual to develop type 2 (I'm 28) but the glucose levels don't appear to be high enough to be type 1.
I've been put on Metformin to start with and they are quite open that I may have to change treatments.
Although, I've not been told about self testing, I don't have a meter and not sure what I'm meant to do about it all.

Hi and welcome,

Please contact your surgery and ask for print outs of your test results. You absolutely need to know which tests you had and what all the different results were. This is important. Doctors are fond of saying they are "high", or "OK", or "fine", but the actual figures are essential to know. It isn't just the glucose tests but also the other tests they throw in, such as cholesterol, lipids, liver & kidney functions etc. These are all important for diabetics. (If you are in England you can also ask if your surgery puts test results on line as they are supposed to do, and how to register for this). Please don't accept anything less than the full information.

If you get these print outs and post the results on here, we can help you understand them.

You do need a self testing meter, and if your doctor doesn't prescribe one for you then you need to buy your own as most of us Type 2s have to. They are essential, but wait and see if your doctor gives you one first. If he doesn't, (and he may well tell you testing isn't advised - ignore him) then we can point you in the direction of some meters.

You already eat salads - so swap the pasta and rice for something else on them. Eggs are excellent, along with cherry toms, avocado, cold meats such as chicken legs, ham, whatever. Vegetables such as broccoli, mushrooms, cauliflower, kale. Use olive ouil and real mayonnaise for dressings on salads, avoid flour based sauces. Have a look at https://www.dietdoctor.com/low-carb/60-seconds where you will find food suggestions and recipes.

Ask as many questions as you like.
 
Hi and welcome,

Please contact your surgery and ask for print outs of your test results. You absolutely need to know which tests you had and what all the different results were. This is important. Doctors are fond of saying they are "high", or "OK", or "fine", but the actual figures are essential to know. It isn't just the glucose tests but also the other tests they throw in, such as cholesterol, lipids, liver & kidney functions etc. These are all important for diabetics. (If you are in England you can also ask if your surgery puts test results on line as they are supposed to do, and how to register for this). Please don't accept anything less than the full information.

If you get these print outs and post the results on here, we can help you understand them.

You do need a self testing meter, and if your doctor doesn't prescribe one for you then you need to buy your own as most of us Type 2s have to. They are essential, but wait and see if your doctor gives you one first. If he doesn't, (and he may well tell you testing isn't advised - ignore him) then we can point you in the direction of some meters.

You already eat salads - so swap the pasta and rice for something else on them. Eggs are excellent, along with cherry toms, avocado, cold meats such as chicken legs, ham, whatever. Vegetables such as broccoli, mushrooms, cauliflower, kale. Use olive ouil and real mayonnaise for dressings on salads, avoid flour based sauces. Have a look at https://www.dietdoctor.com/low-carb/60-seconds where you will find food suggestions and recipes.

Ask as many questions as you like.

Thanks for the advice about the test results, i noticed that there is a section for test results on the online portal for my surgery, but it says that it has been disabled by the surgery. I will ask for it to be done, i wasn't aware it could be.
I'm worried that I won't understand it, but Thank you for saying that I can post it here for advice.

Thanks for the salad suggestions, I avoid all dressings on them because of my IBS, but I'm worried I won't find it as filling without rice etc. I will definitely give it a go.
 
Hey @Juicyj
Thanks for the reply/
It was picked up by my GP, I was experiencing a numb foot and she wanted to rule out diabetes as the cause, and ended up ruling it in. I had Meningitis and Septeceamia in 2015, and had originally thought the numb foot was a result of that, but sadly not.

I had a few blood tests over the last few weeks that they said would help determine the type, but there was some issues with the blood taken and I've had to have them redone.
They're saying I'm an anomaly because of the factors involved. They're saying my age makes me unusual to develop type 2 (I'm 28) but the glucose levels don't appear to be high enough to be type 1.
I've been put on Metformin to start with and they are quite open that I may have to change treatments.
Although, I've not been told about self testing, I don't have a meter and not sure what I'm meant to do about it all.

I've got an appointment next week with a GP that specialises in Diabetes, and I'm hoping that'll give me more clarity.

As for the food, I lived off of rice, pasta, fruit and vegetables. Usually rice and pasta salads etc
I followed Slimming World for a long time, and would do their Overnight oats for breakfast (porridge oats, yogurt with fruit)
I developed type 2 when I was 29/30... it was hard to get my head around the diet at first and could be a little depressing, but now that I have it down pat it's brilliant. I feel better too. Lots of info on here, my main advice would be to buy a test kit (cheap one is the code free) and test before and then hourly after eating to see how each food affects you personally, I would keep a diary too. This way you know what you can and can't eat... some people can tolerate food others can't so just saying a list isn't that helpful to you. We can start you off but it is your adventure and where it takes you will be different to where it takes someone else.
 
Thank you...
So my lack of knowledge comes to play again, when you say about the test kit, what do you mean by code free?
 
@addiequince

Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 250,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
if your surgery puts test results on line as they are supposed to do,
There is no obligation for GP practises to show patients blood test results online or even give printouts. I am signed up with Patient Access but was told by my surgery I would only be able to order repeat prescriptions and make appointments at the moment as they do not put blood test results or records online yet. I can get a blood result printout if I want it but they charge 20p for one
 
There is no obligation for GP practises to show patients blood test results online or even give printouts. I am signed up with Patient Access but was told by my surgery I would only be able to order repeat prescriptions and make appointments at the moment as they do not put blood test results or records online yet. I can get a blood result printout if I want it but they charge 20p for one

http://www.nhs.uk/NHSEngland/AboutNHSservices/doctors/Pages/gp-online-services.aspx

from that page
"
Sign up to GP online services and you'll be able to use a website or app to:

  • book or cancel appointments online with a GP or nurse
  • order repeat prescriptions online
  • view parts of your GP record, including information about medication, allergies, vaccinations, previous illnesses and test results
  • view clinical correspondence such as hospital discharge summaries, outpatient appointment letters and referral letters
The service is free and available to everyone who is registered with a GP."
 
http://www.nhs.uk/NHSEngland/AboutNHSservices/doctors/Pages/gp-online-services.aspx

from that page
"
Sign up to GP online services and you'll be able to use a website or app to:

  • book or cancel appointments online with a GP or nurse
  • order repeat prescriptions online
  • view parts of your GP record, including information about medication, allergies, vaccinations, previous illnesses and test results
  • view clinical correspondence such as hospital discharge summaries, outpatient appointment letters and referral letters
The service is free and available to everyone who is registered with a GP."


That web site also says ...
Do all GP practices offer the same online services?
The services available to you will depend on the online system your GP practice uses.
.
 
I have one of those halogen ovens - they are quite cheap and I can set the temperature and timer and leave food to cook - even if I am just going to bed, so next morning I can take it with me.
I might also add some chopped mushrooms and peppers in a separate, covered dish, in the oven, next morning I can tip them into a wok to heat up and cook some eggs or bacon or sausage to eat with them before I go out.
Once you get into the routine of shopping and cooking so you can eat low carb it gets to be quite easy. It needs to be thought out to start with, but if you use a notebook and write down what is successful and what not it really helps with making progress.
 
That web site also says ...
Do all GP practices offer the same online services?
The services available to you will depend on the online system your GP practice uses.
.

http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/what_to_do.aspx


"How to access your GP record
Some GPs have given online access to their patients' GP records for some time. From April 2015 all GPs should give their patients online access to summary information in their records. This is part of the drive to provide more GP online services to patients. It should give you more control of your health and wellbeing, especially if you are managing a condition that needs regular monitoring and frequent prescriptions."
 
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