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Returning member, really struggling

wyrdspirit

Member
Messages
10
Location
Falkirk, Scotland
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi Everyone,

I'm a returning member as I have had some difficulty in the last couple of months. I was originally diagnosed with Type 2 Diabetes in 2008. I worked hard at getting my glucose levels under control to the point where i was able to come off medication. The last couple of months I noticed symptoms of high blood glucose but put it down to an infection I had at the time. The infection cleared but still the symptoms remained. I eventually gave in and got blood tests done. My hba1c has jumped from 60 to 105 in 6 months. This came as an enormous shock. I'm back on medication, Glucophage SR 1000mg once a day. This is double the dose I was on a few years ago. It's only been a few days since I started the medication but I'm really struggling with it, especially as the day goes on. I feel nauseous, shaky, lethargic....it almost feels like my levels are getting too low. I have no monitoring equipment so have no way of knowing what is happening. It's getting me down and thought I'd see if anyone has been through similar that could give advice or suggestions. Thanks.
 
Welcome @wyrdspirit back to the Forum :).
Tagging @daisy1 who will post on this Thread some useful information.
You really ought to have a Blood Testing Meter to monitor your Blood Sugars = before and after meals.
 
Hi Liam. Thanks. The doctor told me I don't need monitoring equipment. I totally disagree with this. If I could afford the equipment myself then I'd just buy it but test strips etc are a little pricey
 
Hi @wyrdspirit - A Blood Glucose Meter is a vital piece of a Diabetics kit. How else are you to know the effect food has on your blood sugars!
There are 2 popular Blood Sugar Meters used by members - I will post the links shortly on here. :)
 
@wyrdspirit
Here are the sites for Blood Glucose Meters that are used by members on this Forum.

http://homehealth-uk.com/all-products/codefree-blood-glucose/
This is the SD Codefree Meter. State you are Diabetic for VAT exemption and in the UK we use mmol/L
If buying in bulk the discount codes are as follows:
5 packs = 264086. 10 packs = 975833.


http://spirit-healthcare.com/product/tee2-blood-glucose-meter/
This is the Tee 2 Blood Glucose Meter and it's Free. Test Strips and Lancets are reasonably cheap.
 
Hi @wyrdspirit, and welcome back to the forum. I'm not on any meds, so can't offer any experience that might help, though from your description it does sound as if you are going too low. It might just be that your body is trying to get used to the new regime, and will settle down shortly.

Monitoring would help you to learn what's happening; if you can see your way to getting your own equipment - even if you only test occasionally - you might find it a big help.
 
Thanks everyone. I am UK based. I'll ask again when I go to the Diabetic clinic in a couple of weeks. I did get a meter back in 2008 and got the strips on prescription but that was stopped when I came off the medication. I'll have a look at the links. Much appreciated.
 
Thanks everyone. I am UK based. I'll ask again when I go to the Diabetic clinic in a couple of weeks. I did get a meter back in 2008 and got the strips on prescription but that was stopped when I came off the medication. I'll have a look at the links. Much appreciated.

I strongly suggest to please call your GP and book for an appointment straightaway mate.

Your bg readings are too high!
 
Where are you based?

If you’re in the UK it should be provided for free by the NHS!

I know of no-one, including myself, who is a Type 2, only on Metformin/glucophage, who gets a meter and/or test strips on prescription from the NHS. They dont prescribe them to us.

Most of us dont even get to see a doctor, let alone an appointment to a Diabetic Clinic.
 
I know of no-one, including myself, who is a Type 2, only on Metformin/glucophage, who gets a meter and/or test strips on prescription from the NHS. They dont prescribe them to us.

Most of us dont even get to see a doctor, let alone an appointment to a Diabetic Clinic.

That’s very bad. Why is that?
 
That’s very bad. Why is that?
2 reasons have been given to me by my DN (i never get to see a doctor)

1) testing will wear out my fingertips, make me paranoid about my numbers, and i cant do anything about my numbers anyway, so why bother (the NHS doesnt believe that changing our carbs has any real effect on our blood sugars)

2) NHS is too cash strapped to fund it.

Even though its cheaper to pay for testing and the correct food education than it is to continually escalate drug regimes in uncontrolled type 2 diabetics.

are you not in the UK?
 
With an A1c of 105 I am surprised that Glucophage (Metformin) is the only drug prescribed to you. My A1c was almost as high and I was put on Metformin but told that at the next appointment I would probably be put on insulin.
When is your next appointment? Without a glucometer you are riding blind but if finances do not allow it then the best thing would be to lower your carb intake and keep your fingers crossed that your efforts show a good result next time.
 
@wyrdspirit

Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope it will be useful to you. Ask as many questions as you need to and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hi @Resurgam, my diet is mostly vegetarian and I keep to as low carb as possible. I was off medication for years and my hba1c last July was 60. Nothing has changed in my lifestyle which is why I'm shocked at the huge jump to 105. If I cut out or cut down anymore in my diet I'll be eating very little. I'd found a balance that worked. I could understand a gradual increase but not such a huge jump. Guess that's why I'm struggling at the moment. I'll see what the Diabetic clinic says.
 
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