Catherinecherub I apologise if I have upset you.
catherinecherub said:
perhaps you could think of a solution that would meet with your approval?
Yes that's easy just have HCP's recommend a low to moderate carb diet. That would meet with everyone's approval. What else can we do but complain if that simple message is put across so many times without it being listened to AND acted upon.
I also believe I have a right to complain about HCP's
I was diagnosed pre diabetic in Dec 2010 and as Grazer mentioned yesterday advised to swap to the NHS dietary guidelines which I did. By March 2011 I had an HbA1c of 8.3 which was never reported to me and never chased by my surgery until in early December 2011 I went back as I felt very ill. At that point an apology was made I was told I was diabetic. I went to see my son and discovered I had BG readings in the 20's, he pointed me at this site and I immediately started a low < 50g / day carb regime. In late December some 3 weeks after my initial gp appointment and 3 weeks into my low carb diet I had a second HbA1c test which came back at 9.9%. In my mind
IF I had been given the low carb advice by my HCP all the way back when I was pre diabetic I
MAY have avoided progressing to full Type 2 diabetes. Oh and it took to the second week of January before I got to see a DSN. When I phoned my GP and reported BG's in the high teens I got told not to worry about it.
Here's another one. My father went into hospital for key hole surgery. 3 days later he died from septicaemia because the hospital failed to give him the correct antibiotics. I and my siblings were taken into a room secretly by a doctor and told point blank that it was their fault. This statement was immediately followed by "But of course don't ask me to stand up in court and say that because I won't"
Another, my mother died last year. My wife and I cared for her here at my home for the last years of her life. She died with me beside her at home where she wanted to be. When she was first diagnosed with the brain tumour that killed her she was in hospital. As it became clear there was nothing to do for her I went to a meeting which was supposed to organise all the home care stuff she would need in my house. At that meeting I got told "this make take a few days to organise so there is an outside chance you mother will need to be discharged into a care home for a few days if it goes on for very long". I agreed, by the time I got home the phone was ringing and my mother was on her way to some slum where she was physically abused by the staff over a period of a week to the extent that my family had to organise as close to 24hr care for her ourselves. My niece who is a director of social services and absolutely outraged by the treatment her grandmother received is still trying to bring the staff who abused her to account.
More, my mother-in-law an ex nurse and midwife was diagnosed with MS in her late 40's by the time she was in her 70's she was totally bedridden. It wasn't the MS that killed her. She died of cancer, two tumours were identified early on and radiography was supposed to be given for both but a mix up occurred and one tumour was never treated.
I'll keep going. My eldest son a Type 1 diabetic who is highly respected member of this forum who all you HCP's talk too on a regular basis has spent years battling the ignorance of his gp, his DSN and even his consultant. I can't relate any of his anecdotes (but he has posted many) as I don't want to identify or embarrass him.
One more, my daughter had a miscarriage last year. She has a medical condition that was known to her gp and there is as we later discovered a very effective and cheap treatment that could well have saved her baby. She is now racked with guilt as "the cure" was easy for anyone to find if only she'd looked it up on the internet. She has now split with her long term partner. Even before getting pregnant her attitude to all the gp's she went to was they never believed I was ill and all they ever wanted to do was give me a Chlamydia tests even though I was in a long term relationship.
I'll end with this one. My aunt a woman of great faith was diagnosed Type 2 late on in life. When she could no longer cope she was placed in a care home. At the age of 94 they put her on a strict diet and forced her to exercise. Within two months she was dead. She contacted my mother and asked her to visit. At the visit she told my mother she couldn't take the way she was being treated any more and would rather be with her husband. Three days later she died she simply lost the will to live.
..and after all that I still believe there are good HCP's out there but they are being drowned out by the status quo seekers and the arrogant ones who think they know best. Please don't give me the "complain to your practice manager or take them to court or whatever" Like most people I am not the vindictive type but I do what change to happen.
