Tell your GP you want a referral to the diabetes team at the hospital - Type 1 needs specialist care and they will be able to help you avoid DKA etc. "still here" shouldn't be enough - you should be well and not needing admission to hospital tooJust myself mate. Two years in now and I’m still here so I’ll be ok. I just re order my insulin and stuff every two weeks
Very good info Clive but after two years of constantly trying but to be told you need to wait 6+ months to see a specialist is a joke.
Hi, sorry for interrupting, I'm nervous. I've been waking up with high BS every morning, 9.0-10.0, its usually high during the day as well, goes up to 14.0. I feel shaky all day every day and I feel sick even when my BS goes back to normal range. I feel dizzy, cant feel my head and sometimes my leg is numb. I dont think its possible to get DKA with my readings, but I've never had this feeling for this long. In the past I only got this feeling for max an hour while I waa high, but now it continues for the whole day and it stops me from doing my daily activities properly. I had to cancel my doctors appointment due to lack of time, but I'm worried. I feel close to fainting the whole day. Should I raise my basal to get bettwr morning results? Maybe that would help? Thanks in advance for all answers.
Ye uk ....Moved to a new town in March 2018 haven’t seen anyone got given an appointment to see someone in August and I missed the app by like an hour. Tried to explain that due to shiiit levels I am all over the place and they say they have discharged me from the hospital even tho I never went in the first place. Been back to my doc they just **** and winge my hba1c is 148. Still didn’t get re ref again tho... #ithoughtwasdanger #obvsnotThere's something I'm not seeing here. Are you in the UK? The wait to see a DSN is no more than a couple of weeks, shorter if it's urgent. Do you have personal reasons which restrict which appointments you can go to? Which specialist are you on a 6+ month waiting list for, and where? Are you registered with a GP? Do they know you're T1 diabetic? Do they do their regular reviews and do you go to them (should be 6 monthly minimum)?
Yes, that's a few questions. But the normal experience of diabetes medicine in the UK is way, way better than you describe, so I'd be interested to know why it's failed for you - and maybe by answering them we can help with some of the problems.
Ye uk ....Moved to a new town in March 2018 haven’t seen anyone got given an appointment to see someone in August and I missed the app by like an hour. Tried to explain that due to shiiit levels I am all over the place and they say they have discharged me from the hospital even tho I never went in the first place. Been back to my doc they just **** and winge my hba1c is 148. Still didn’t get re ref again tho... #ithoughtwasdanger #obvsnot
Couldn't agree more! Blindness, or the very real likelihood of it, made me change my attitude (and treatment) at the age of 21, er, 39 years ago. It is impossible for @Bladezy to fully realise our experiences, unless... it's too late. Which it isn't right now.Hi @Bladezy is there any possibility you are in denial about your t1 ?
I couldn't imagine not controlling mine, the fear of going blind is enough to keep me on track and seeing my daughter grow up is my motivation.
Please ask your DSN for some support and take back control, as you know even if you can't see what damage is being caused, it's inevitable so getting support is vital.
Hi @Bladezy I think this has a lot to do with glucose tolerance. In my late teens my glucose tolerance (i.e. how high my blood sugar levels could reach before feeling unwell) was very high - nobody talked about HbA1c then. But if it sharply increased I would get very bad ketones, which would blurr my sight, make me nauseous, or even sick, give me appalling diarrhoea and lock my muscles up. Once I had been read the riot act, at the age of 21, and been lent a glucometer like a housebrick, my glucose tolerance went down to a point where I had the same symptoms as above, sometimes even if my blood sugar was only just over 10mml/ml. All I can say is that the longer your tolerance level is high, the more damage will occur to the extremes of your circulatory system, that is, eyes, feet, kidneys and private member's bill. Nobody can force you to do this, but my life would have been very different had I not ignored advice in my childhood and teens. Good luck with tackling this.Hi guys I was just wondering how rare it is for a type 1 diabetic to not get any symptoms of dka even if not having control of their glucose levels
Before increasing basal, especially over night, Google somogyi effect. You need to be certain the high morning numbers really are due to insufficient insulin or it could be the last basal adjustment you ever make .Hi, sorry for interrupting, I'm nervous. I've been waking up with high BS every morning, 9.0-10.0, its usually high during the day as well, goes up to 14.0. I feel shaky all day every day and I feel sick even when my BS goes back to normal range. I feel dizzy, cant feel my head and sometimes my leg is numb. I dont think its possible to get DKA with my readings, but I've never had this feeling for this long. In the past I only got this feeling for max an hour while I waa high, but now it continues for the whole day and it stops me from doing my daily activities properly. I had to cancel my doctors appointment due to lack of time, but I'm worried. I feel close to fainting the whole day. Should I raise my basal to get bettwr morning results? Maybe that would help? Thanks in advance for all answers.
Before increasing basal, especially over night, Google somogyi effect.