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Type 1'stars R Us

Discussion in 'Type 1 Diabetes' started by Robinredbreast, Jun 10, 2018.

  1. Robinredbreast

    Robinredbreast Type 1 · Oracle

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    That's lovely Daphne :)
     
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  2. ert

    ert Type 1 · Well-Known Member

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    It's the last day of my summer break. I'm back at work tomorrow. I'm apprehensive about being back at work, now that I'm on insulin. I'm worried about eating at work as I always wait until my blood sugars have dropped 0.3 mmol/L before starting and that can take from 20 to 50 minutes. I've been told by HR not to inject in front of my colleagues and have been offered an office, miles away if I need to inject. I'm on MDI and tend to sugar surf which requires 8-10 injections a day. I keep thinking I should not eat until 4 pm to avoid the entire situation. That's the easiest fix, even though there isn't anything easy about fasting. All of this must seem silly to someone who's been on insulin since they were small. In the end, the secret is not to overthink anything and just keep going. I'm going to try to spend the day avoiding the elephant in the room. I hope it doesn't bat me with its ears or stomp on my toes.
     
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  3. helensaramay

    helensaramay Type 1 · Expert

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    @ert did HR explain why you should not inject in front of your colleagues? And did they give you extra time for lunch to get to the far away office fir injecting? Did you have to go to that office to check your BG too? I think that could be a problem if you feel a hypo coming on and need to go for a long walk to confirm Libre readings.
    It seems bizarre and lacking in understanding. Perhaps you can talk to your colleagues and come to an unofficial arrangement. I used to inject at my desk and the guy who sat opposite me for years had no idea I had diabetes because I did it discretely. I never asked HR what they thought as they worked in a different part of the building and my diabetes did not effect them.
    Regarding waiting for the 0.3mmol/l drop between injecting and eating, my approach to waiting is dependent on my starting BG. 6.5 and over, I will wait. Any lower and I am happy to eat straight away ... or at least I test, inject, prepare lunch and then eat.

    Your concerns don’t sound silly to me . The HR reaction seems silly. I don’t know what you do and what your working environment is like but I would read up on your rights at work (https://www.diabetes.org.uk/how_we_...employment-and-diabetes---your-rights-at-work)
     
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  4. Robinredbreast

    Robinredbreast Type 1 · Oracle

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    Hi and good luck going back to work tomorrow. I am really saddened and annoyed that you have been told to inject miles away in an office, diabetes is not contagious !!, nor is it offensive, because the pens are so discreet, they just look like pens, the needles are very small too and no one would even know what they are.
    I can't help with injecting 8 to 10 times a day, as I have never done this. I only eat my 3 meals a day and I, personally, would worry about the over stacking of Insulin with constantly injecting.
    Are you an office worker, desk or a manual worker, more active or less active ?
    I hope tomorrow goes well for you, take care
     
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  5. Daphne917

    Daphne917 Type 2 (in remission!) · Well-Known Member

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    Thanks I’m really looking forward to it especially as hubby has Monday’s and Friday afternoons off as well - although we’re booked up for lunches, meeting with friends etc for the next few Mondays so will be quite busy me thinks!
     
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  6. hh1

    hh1 Type 1 · Well-Known Member

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    @ert I'm with @helensaramay on this. 'Reasonable adjustment' is what your employer has to make to accommodate your diabetes. Giving you a far away office in which to inject without additional time is not reasonable. Do the HR staff who've issued this instruction have any understanding of T1 or what minimal intervention an injection actually is? I'm also not at all sure they're entitled to tell you not to inject in front of your colleagues. Years ago when I was emplyed by someone else, if I needed to inject in front of people and there was, for instance, no convenient table under which to conceal it, I'd tell them I was going to do it and ask any needlephobes to look away, or turn my back on the room to do it. That seems to me eminently more sensible and reasonable than a long walk for an essential injection. If your regime is working for you, I really don't think you should adjust that; the adjustment should come from the other direction.

    Finally, fwiw, when I went back to work after my diagnosis, apart from my colleagues teasing me about all the little pricks I'd now be experiencing, lots of them were very curious and all of them very supportive, and keen to know what they should do if there was a problem. I hope you can negotiate through this and that you find at least some of the kind of reactions from colleagues that I was lucky enough to have. Good luck xx
     
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  7. helensaramay

    helensaramay Type 1 · Expert

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    @Daphne917 i’m jealous of your three day working week.
    I love the idea of retiring gradually.
    A few things friends have found when cutting back on their hours
    - make sure your employer has really cut back your workload and does expect you to do the same amount of work in 60% of the time make sure you don’t end up doing unpaid overtime for their lack of planning.
    - be aware your husband has been used to his “me time”. A friend’s mother complained her husband got in the way when he retired after her. It’s not that she didn’t like having him around more of the time but they had always had time apart with working and then her retiring. It took a while to get to being together 24/7. Actually, my parents maintain separate friends and activities.

    I am sure you have it all planned with couples lunches and girly lunches and time to do your hobbies and time to get out and ....
     
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  8. becca59

    becca59 Type 1 · Well-Known Member

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    @ert I’m with everyone else re work. Sounds ridiculous to me and something that a sit down discussion should be able to sort to better advantage. Going back to work on insulin is stressful. I was very het up for a couple of weeks. I worked in a primary school. Luckily there were 2 other type 1 staff plus at that time a young child. So a lot of support and understanding. The hardest part was remembering to check levels when distracted by children and their needs. But I did it, pre Libre days, and eventually everything came naturally and I wondered what I had ever been worried about. You will achieve that also.
    I am interested in the reasoning behind that 0.3 drop. I personally do not believe that glucose monitors are that micro accurate. Having tested with three different monitors at the same time, I found the difference eye opening. Like @helensaramay I eat if below a certain number and wait if above. Though I rely much more on the directional arrow on my Libre these days.
    Good luck tomorrow! You will win!
     
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  9. becca59

    becca59 Type 1 · Well-Known Member

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    I think I mentioned a few pages ago that I had failed to take my basal. Well that experience has been interesting. I’m on Toujeo and take at 8:45am an alarm rings on my phone/watch to remind me. Which it did, but I must have got distracted, as in the afternoon it dawned on me that I may not have taken it. I decided to ride it out until the following morning, taking the hit and injecting extra bolus accordingly. As the day wore on I started to doubt that I had indeed forgotten it. Lovely straight line in the 4s right up until 3am when the rocket started. 18 hours after the missed dose. Cue many basal doses! Took it the following morning and the levelling out has just started, 24 hours after that injection. Am now in the 8s and looking as though it is gradually levelling out.
    What have I taken away from this? Well Yes i am a silly Billy! But also how long all this has taken to work through. No wonder I am a few days noticing a difference when I adjust up or down a unit. And why it is important to wait a few days before deciding if that adjustment is correct.
     
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  10. MeiChanski

    MeiChanski Type 1 · Well-Known Member

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    Morning friends,
    8.3 on waking so I’m currently deciding what to have for breakfast. @ert Best of luck to you and the arrangements they’ve made doesn’t seem fair. Was there not anywhere within the building that you can go to? I feel they are prioritising needle phobias than helping you. I inject anyway, no one knows because it’s so quick nowadays.
     
  11. smc4761

    smc4761 Type 1 · Well-Known Member

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    @ert I am another who agrees with what has been said so far. The conversation with HR seems to have been 1 way, they telling you what you should do.This should be a 2 way conversation with you at least telling them the concerns you have, about eating and taking insulin. They should also be made aware what needs to be done in the event of you experiencing a low blood sugar. Most diabetics I know are very discreet at taking their injection and most of your colleagues would not even know you are doing it, some may even be interested. Unless you are standing in middle of office and making a song and dance of it, announcing look folks i am about to inject, there should be no reason why you cannot inject in front of them discreetly.

    If you have a decent employer they will make reasonable adjustments for you. If necessary encourage them to get their occupational health team involved and ensure they carry out a risk assessment on you.

    Oh and good luck. If you need any advice please ask away, the knowledge on here is fantastic
     
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  12. Antje77

    Antje77 LADA · Moderator
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    Looks like it has been a useful experiment, even if it was unplanned :)
     
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  13. Antje77

    Antje77 LADA · Moderator
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    I agree with the others, well worth having a chat with your co-workers and/or HR about simply injecting at your desk. I would try to find out what your rights are on this before talking to HR though. If it can be solved in a friendly conversation, all the better, but it can't be bad for you to know if they're allowed to tell you you can't inject everywhere you happen to be during that friendly conversation. Good luck!

    When I started insulin (novorapid) I pre bolused by 30 to 45 minutes as well and I found it one of the most annoying things about diabetes. After 6 months or so Fiasp was released in the Netherlands and I called my practice nurse right away to get it. Solved the problem nicely for me, I now inject and eat, and usually manage a flattish line if I don't go too far overboard with the carbs.

    I can't remember what insulin you're on but it might be worth to look into Fiasp.
    Good luck!
     
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    #22433 Antje77, Sep 1, 2019 at 10:27 AM
    Last edited: Sep 1, 2019
  14. MeiChanski

    MeiChanski Type 1 · Well-Known Member

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    I’m seeing my dsn soon, I don’t know what to tell her other than I’m stressed, depressed and a hot mess. Also I’ve had a lot of issues trying to get fiasp and sensors, I’ve been without a sensor for over a week now.
     
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  15. helensaramay

    helensaramay Type 1 · Expert

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    Eurghhh I had a rubbish night and I think I only have myself to blame.
    It started yesterday when I changed my pump. Stupidly, I tried to insert the needle into my hop bone ... and it didn't go in. So I removed my pump and moved it.
    I had a carby lunch and a lazy afternoon. So whilst I was surprised with a reading in the 20s, I wasn't overly surprised that I had miscounted. I think I had omitted to count the carbs in one of my wraps.
    My BG wasn't coming down quicker enough for me so I jabbed myself with a syringe and a syringe rage blouse a little later when it was still higher than I wanted. Then, given the rage involved, a hypoed. I took this to mean the pump was working but and the syringe took me over the limit.
    Tea was again a bit carby and, being cheese and biscuits with wine, it is easy to forget to bolus for some biscuits ... especially towards the end of the evening when the wine had been flowing for some time. So, I corrected the high with my pump and went to bed.
    I was a little concerned about the pump so put a spare patch set out in case I needed it.
    At 3am I did. My BG was back in the 20s so I needed a pump change and then stay awake for an hour to check it worked.

    And, according to the law of sod, my Libre had fallen off on Friday so I was doing lots of switching on the light and finger pricking. I considered activating the sensor warming up on my arm but realised I probably wouldn't trust it anyway.

    With my old tubey pump, I could disconnect the pump, check insulin was flowing and attach a new cannula. This is not possible with my patch pump - I had to throw away a full patch with battery and insulin. That was one of the reasons why I had not done anything earlier - I didn't want to waste what could be a perfectly good patch.

    Normality has resumed and lesson learnt.

    At least I was up early to bake my bread.
     
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  16. becca59

    becca59 Type 1 · Well-Known Member

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    @helensaramay a hop bone! Don’t think I have one of those
    A frustrating night for you. Crackers and cheese are the worst aren’t they. It is supposed to be such a pleasurable grazy meal. I have to count my biscuits onto my plate now before I start. Or I go mad,
     
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  17. helensaramay

    helensaramay Type 1 · Expert

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    @becca59 ok, so it was a hip bone. I definitely have one of those - I tested it yesterday.
    Crackers and cheese are a pain. The problem is that I don't know how many I am going to have if it is the full meal.
    I can count the crackers onto the plate if it is instead of dessert but as a full meal it is more buffet-style grazing.
    I do an extended bolus for the minimum amount of crackers I am going to have and then try to top up per 3 crackers. By then the wine has been flowing for a few hours.
    We don't have cheese and crackers very often - I don't think I do enough exercise to have that much cheese regularly. Although it may give me more fat over my hip bones :)
     
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  18. Antje77

    Antje77 LADA · Moderator
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    Naw, it's diabetes you have to blame, not yourself!
     
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  19. MeiChanski

    MeiChanski Type 1 · Well-Known Member

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    @helensaramay Sending you a hug, I’m glad you are okay now. I’m interested in this so called hop bone, I’m currently looking at a skeleton diagram looking for it. :D If you want us to throw diabetes into a dust bin, we can help ;)
     
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  20. Mel dCP

    Mel dCP Type 1 · Well-Known Member

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    Morning all, am I last on parade?

    @ert - I can’t add much to what the others have said, but wanted to wish you a good day for tomorrow.

    @MeiChanski - I’ve bought so much stationery... Paperchase is my downfall!

    @helensaramay - autocorrupt caught you again, I see? Sounds like a miserable night, hope things even out today.

    Did a pod change last night and the flippin’ thing wouldn’t pair with the RileyLink, this happens sometimes. Normally I sit on it to block the radio signal and hit the “deactivate” button on my phone, and restart the pairing process. This has always worked, but last night the pod started screaming. There is a tiny hole on the back you can insert something pointy to shut it down, which I was able to do. Some people put them in the freezer until the battery dies, or smash them with a hammer. I’ve been tempted to shoot them :D So I too have wasted a patch pump. I was able to hoover the insulin out of it and start a new one, but it feels so wasteful.

    Off to Sainsburys in a bit, as they have vegan Quorn ham slices on special offer, and I rely on those for packed lunches. I’ve got an introductory day at uni tomorrow, and they’re giving us a £5 lunch voucher, but I’m taking food just in case. And I’m available for supply teaching the rest of the week, so need to be prepared!
     
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