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Type 1'stars R Us

Discussion in 'Type 1 Diabetes' started by Robinredbreast, Jun 10, 2018.

  1. slip

    slip Type 1 · Well-Known Member

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    @Knikki perhaps we're all just getting old, I know I'm starting to sound more like my old man every day - grump old g!t :hilarious:
    But at least I didn't have to pee in a test tube and add 'chemicals', just had to dip the strip!

    I think it was mentioned a while back that sometimes responding to some threads the delete key frequently gets used, either to save putting someone else's back up or because on second thoughts is it going to be worth it?!

    Have a good 'rage' free day everyone!

    PS. Curry AND wine is a frequent occurrence in our household, along with any other meal AND wine :rolleyes:
     
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  2. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    Good morning teabags and numbers addicts. Happy night, and that means the numbers mean a good sleep and a cheerful wakening. Have a day with lots of pleasure in it, everyone.
    Curry and beer for me. The curry needs lots of veg in it too as well as the meat or fish. Not a fan of the milk boiled until solid and excessively sweet treats that sometimes follow, it has to be mango, rambutan, or, if there are pegs for fellow diners’ noses, durian.
     
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  3. SueJB

    SueJB Type 1 · Well-Known Member

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    @smc4761 and @Knikki Thanks for both posts. My grandmother and aunt were both T1 as was my Cuban friend so I was very aware of what they had to do to manage the disease. I do realise how lucky I am. When first diagnosed, the only thing I kept thinking was I couldn't deal with the syringes etc etc. Relief was immense when then showed me the dinky 4mm needles. I think I do get a bit prissy about low carb eating. I know I've mentioned not drinking cider anymore but heyho, there are 4 bottles in the pantry and I feel a curry coming on. Thanks all for getting my head from out of the part down below which I can't write
     
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  4. porl69

    porl69 Type 1 · Well-Known Member

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    100% with you on this one. I do come on the forum a lot during the working day and have a look around and my blood boils at some of the threads.....I start to type a response and end up deleting before posting and causing upset (I can be very outspoken lol). 1975 for me and can remember the 10 drops water and 5 drops of urine.....if I knew I had been "naughty" and not kept to my VERY strict diet then I would only put 2 drops of urine in and 13 drops of water to fool my mam.....it NEVER worked. The only person I was fooling was myself!
     
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  5. porl69

    porl69 Type 1 · Well-Known Member

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    PS This thread DOES keep my going :)
     
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  6. porl69

    porl69 Type 1 · Well-Known Member

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    @Knikki and @smc4761 were you on grams of carbs when diagnosed? I can remember being given a packet of cards with different foods on and there "Portion" value. I had to have 4 "portions" for breakfast at 8am 1 "portion" at 11am 5 "portions" at 1 pm 1 "portion" and at 6pm 5 "portions" and possibly a portion at 8pm before bed. Every diabetic appointment the cards and values were changed. HOW did we survive lol
     
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  7. Cumberland

    Cumberland Type 1 · Master

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    Good morning friends
    Bright and sunny up here but oh so frosty

    Have a good day peeps
     
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  8. LooperCat

    LooperCat Type 1 · Well-Known Member

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    Late on parade today, slept in after I didn’t get a phone call for any teaching work.

    Curry was lovely, I dosed as I went. I’m sure there may have been sugar or flour in the sauces, and I prawns for both starter and main, which means extended bolus over 2 hours, plus instant insulin for the carbs. Don’t think that’s too bad, considering...

    F0EE9ADD-F972-4739-94D4-00E103E57420.png

    Will go for a little walk later, hopefully I won’t hypo at the end of it!
     
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  9. hh1

    hh1 Type 1 · Well-Known Member

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    I'm a bit later to the party than some of you guys, I came in when testing was peeing on sticks - not my preferred pastime :arghh: I do remember portions @porl69, then it was 10g carbs to a portion. I have problems these days wheb everyone talks blithely about ratios - I don't think in those, I still think in portions and units. I don't know why I find that transition almost impossible but I know when I'm asked about ratios I can feel one of those stupidly vacant expressions spreading across my faceo_O. And though we had disposable syringes you had to draw up each dose, and I never found a discreet way to do that, and no MDI so much stricter times for eating. I do sometimes feel as though I got left behind at some point; perhaps because I didn't see a consultant for so long, but also because some HCPs undoubtedly thought that if you'd had T1 for that many years you had to know what you were doing. Well, I did, but only sometimes! Undoubtedly this forum's been my biggest learning resource for years, and that includes being a member of Diabetes UK since diagnosis (except I won't be renewing this year).
     
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  10. Juicyj

    Juicyj Type 1 · Moderator
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    Very cold here, still getting overnight highs at 13.6 and a poorly tum and my Dexcom sensor ended this morning, I decided to so a run but as the new one takes 2 hours warm up I carried on and went for my first run in 2 weeks testing on the meter before I went at a pretty safe 7.4, turned pump down to 50% temp basal, started out ok then up the hill, came down and lost my puff ! I managed 5km which was ok in my book, got home tested at 5.2, so walked the dog came back and dropped to 3.3. New sensor is working now and have bounced up to 10.4, so all in all a yo yo day on the tightrope for me, hope others have a more balanced one :)
     
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  11. Juicyj

    Juicyj Type 1 · Moderator
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    @helensaramay Agree, with being diagnosed later in life, I feel grateful that we have access to so much technology, it can take alot of the effort out of it when working as it should do, the pump has been the best game changer for me since being diagnosed and has reduced my anxiety levels greatly so very fortunate to have this kit.

    One thing I have always known since doing DAFNE is to respect each other's food choices, I learnt at DAFNE that some T1 diabetics cope incredibly well with carbs, it's different for me, but I still respect other's choices.
     
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  12. Colin of Kent

    Colin of Kent Type 1 · Well-Known Member

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    Well said, @Knikki ! And I couldn't agree more with @kitedoc .

    This sort of thing appears to me to be symptomatic of our reductionist / sensationalist tendencies in the modern, tech-driven, social-media-driven world. People seem to form opinions isolated / insulated from the rest of the world, in echo chambers. I see it happening in all sorts of topics, not just diabetes.

    I was diagnosed in 1990 and by that stage, 'BM stix' as they were known were commonplace, but waiting a full two minutes for a result was a PITA. I'm always so grateful that things were as advanced as that for me, though. I truly take my hat off to any senior T1's who've made it through far worse than I have. I'm also grateful for the enormous developments that are happening continuously, and try to keep learning as I go.

    At the end of the day, it's often enough to congratulate ourselves on getting through each day relatively unscathed. Whatever means we choose to do so - whether it's counting exchanges or low-carb - it's a very personal choice, which should be respected, but ultimately it really doesn't matter as long as we're happy, I think.

    Just my tuppence-worth...
     
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  13. drahawkins_1973

    drahawkins_1973 Type 1 · Well-Known Member

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    Well done you for going for a run! I really need to get out and about again as I haven't been since the 29th of December eek!
    Its perfect running weather today so maybe this evening.......(perhaps)
     
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  14. Juicyj

    Juicyj Type 1 · Moderator
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    Thanks :) Personally I like mornings for running, generally as my BG seems to be more stable then (normally, unlike this morning but think my bug affected it), also because I work and am a mum it's the only time of day I get to myself, I find I run easily in the morning, less to think about and more motivated too :)
     
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  15. Jaylee

    Jaylee Type 1 · Master
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    Well? Eye sight has improved. No jab today... :cool: Future's so bright along with the sunshine & pupil dilation. I gotta wear shades.

    @porl69 @Knikki @kitedoc . I hear you brothers.
    Summer of 76, I was a Clinitest pee kit user. Big ol glass syringes. Didn't get given a BG meter till the mid 80s. MDI came along in 1989 with a 3 page booklet on a potted version on how the regime works..
    The system for carb counting on diagnosis was "exchanges." Portion control. Going hypo mid morning? Have a snack. Mid afternoon snack.
    Night time? Snack before bed.. Lol, my experience back in the days of appointments with the spacialists felt more like a "rehab centre..."

    I don't feel as indestructible as I did in my teens.

    I know personally of one guy who didn't make it. (A gold medalist.)
    I would have liked to share this thread with him & his own tales of "rock & roll", however as confident as he looked on stage. He was a shy man of very little words with his D.

    I couldn't play his bass line, any more than he could sing my tune..
     
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  16. LooperCat

    LooperCat Type 1 · Well-Known Member

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    DAFNE still refers to “carbohydrate portions” with 10g = 1CP.
     
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  17. Colin of Kent

    Colin of Kent Type 1 · Well-Known Member

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    I'm always intrigued by the notion of 'normal eating'... would love to see it defined somewhere!
     
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  18. smc4761

    smc4761 Type 1 · Well-Known Member

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    @porl69 I was on grammes of carbs and for almost 30 years i stuck pretty much rigidly to this. 60 gammes of carbs for breakfast, lunch and dinner, and 20 grammes of carbs for morning afternoon and evening snacks. I was never told to vary the amount of insulin i took, though around year 2000 think i did start to adjust insulin slightly but never took correction doses

    Dont get me wrong even though I was only supposed to be taking 60 grammes of carbs on many occasions, I would go way way way over that. I can remember, I think, going out on a Friday night for years downing 8 pints of beer then going for a Indian

    On the plus side i am still here, god knows how. How i survived without having blood test strips, i have no idea. I never go anywhere now without my BG meter or now my Libre. i am pretty much reliant on it as guide.

    I have this mindset at times, when i can convince myself i have a low BG, no matter how high this may be. I do a lot of walking to very remote places where i dont see anyone for hours. On numerous occasions i have got myself into a real state where I am convinced i about to go hypo. A quick test however can have me with a BG of 15 plus
     
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  19. evilclive

    evilclive Type 1 · Well-Known Member

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    Mmm, the absolutely fantastic taste of food while hypo. Got breakfast timing wrong (exciting parcels to deal with), so went a bit low. Eating was wonderful, so tempting to just carry on. The worst bit of the hypo is the damp clothes (cold sweat) in a cold house, which are taking a while to warm up.

    Re the various ranty posts - have I been lucky by just reading the T1D sub-forum? There's not much kookiness on here.
     
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  20. Alison54321

    Alison54321 Type 1 · Well-Known Member

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    Interesting discussion. I was diagnosed in 1976, and all I can remember now about my diabetes management is all the bits that went wrong. I suppose there must have been bits that went right, or I probably wouldn't be here, but I can't seem to remember them.

    It's interesting. I suppose we were given so many warnings, and very little recognition given to doing things right, that it's likely that the bad bits will be remembered more than the bits that went right, but it does feel weird.

    Anyway, we survived, sadly quite a few didn't, and it's good that it's getting easier to manage, but there's a long way to go.

    I just think everyone has to deal with it in their own way, I've had absurd arguments about not eating fruit, and I have my doubts about very low carbs being a good thing over the longer term. But I have reduced my carb intake. a bit, since joining the forum, and getting the libre, or I think I have, though sometimes I calculate, and include the carbs eaten for hypos and think it's probably the same amount. But anyway...................it's an issue that will continue to be debated, for a log time, I suspect.
     
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