Yes, I can totally understand where you're coming from.
It's a fine balancing act, isn't it? Pain increasing blood glucose levels versus exercise to reduce them... I've taken up swimming to temporarily replace walking until I'm able to walk again, and I look upon my wheelchair just as a tool to help me get around until I can do it again under my own steam.
I wish my GP had explained the addictive aspects of some of the drugs he was prescribing to help me deal with the pain before I had the operation, though, such as codeine and tramadol. It would have been helpful if he had outlined a plan to help me stop taking them, too. I was a little naïve and simply stopped, and then endured the longest and worst month of my life suffering the withdrawal symptoms. Horrendous...
@debrasue I think I have fibromyalgia!
Just had a chance to read up after concentrating on 4yr olds health needs for a few months, on top of my chronic pain.
I am much better on tramadol, I have ibs now and sleep disturbances a little less on pregabalin from hospital. Today I'm at GPs to ask to be continued on pregabalin tablet. My ability to go into deep sleep is more obvious on pregabalin than pre tablet. I get a chance to relax and repair.
I havent slept properly for 5yrs now so if I get 4.5hrs sleep like last night it's great compared to waking hourly like I've done, all this time.
I'm hoping I can stop having to use my 'uk night owl' thread and wake refreshed and enthusiastic about my day.
Codeine (with paracetamol) made my pain worse!
Is your pain localised to your foot/ankle or are you suffering like me. All over pain (additional to scatica for me).?
I am wondering if tramadol triggered fibromyalgia or just disguised it when started for bulging disc/s.
They say sleep deprevention can be a trigger for fibromyalgia. I wouldn't be surprised. I've never slept properly since last pregnancy. Obviously due too his ASD which was severe as a baby. He's just starting to sleep throughout the night now. Phew!
I'm having occasional 'wipe outs' which cause me to sleep even during the day, unlike yesterday but maybe today. We'll see. I'm hoping to find a pattern I can work with to improve better sleep.
Shame I've only just had time to read up properly about it.
Hoping I can be diagnosed properly soon or at least my GP treat me appropriately.
Today will be the break through, fingers crossed.
Hoping to chase up my MSK appointment before seeing GP so I know what I'm talking about with him. I want to discuss what MSK can do for me as physio was very time consuming and I got very very little from all the pain and effort.
My bariatric psychologist picked up the possibility of fibromyalgia as a diagnoses for all my pain. She was brilliant. She advised on-going psychological support which I can now also concentrate on.
Gosh this is soooo hard work!
Neither wonder Mr ickihun is saying I'm high maintainence. He's not wrong at the minute.
I'm encouraging him to be more involved in 4yr olds ADS as his family have genetically history with it. He understands its need more. It will give him focus too.
I can concentrate more on getting some improved pain relief structure and helping 11yr old with stats and both with weight loss.
Its needed this medicational help for me, nhs and school support for little one to be able to think clearly and act upon it efficiently.
If I didnt go for bariatric surgery I'd never have queried my pain problem nor moaned about 4yr olds additional needs.
I would have just muddled through, after all that's what I've done all my life through my mother's disinterest.
I know now what's important going forward and ironically returning to the north-east is looking to be the best move for my family, to date. Irrespective of a manipulating and distructive mentally ill mum. I wouldn't know where to start putting her right but she won't help herself so I can lead the horse to water but I cannot force her to drink. Our GP tries the same but she won't listen. She avoids the GP who knows her illness and won't even talk about it. One day she might see the light but her regret may kill her.
I think I need to avoid being cruel to be kind on this occasion. I haven't written her off but I'd not want her to be bitterly regretful enough to cause her harm. She is my mum, after all.
Shame I wasn't aware of this at a much younger age but it's only just come to light since returning to my home town. I had to spread my wings otherwise I'd been mentally stunted or worse if I hadn't left.
I can put hand on heart and say I fly high once the wind takes me!
