Mmmhh.
I like how you did that
@gennepher .
Very effective.
But I think you're spot on re digital
Be interesting to see if there is only a small note on the screen regarding your deafness ?
Or even if it's on a secondary information page?
One that might easily be overlooked ?
Of course you'll have considered the option to simple repeat the card BUT carry it with you to every appointment & present it at first opportunity to who ever is in charge of your procedure / appointment.
A nuisance indeed, but the best work around to increase the chances your next appointments go smoother for you .
Though why caring for the patient seems so secondary is beyond my understanding.
Good on you for posting in about your shoddy treatment.
It may not change much but it MIGHT point out the current flaws in the system AND please god even if it doesn't help you, it may at some point help someone like you , which I think also makes the effort of reporting it worthwhile.
Well done
Best wishes for a more restful day.
Thanks
@jjraak
Sorry I didn't respond more quickly, I am trying to get back on track to normal everyday things...
You are right, the deafness information could have been on a secondary page. Which is just useless for me, and is useless for anyone with a disability that should be flagged up when someone opens the screen. In today's digital age it could easily be that something could come up on the screen for five seconds giving a medical information and going to a small button on the corner of the screen in case someone needs to touch it again.
Actually I still carry my old cards from 2004 I printed loads. But more recently, especially the nurses in my so called GP practice, one of them just tossed it aside without reading and the other one just waved her hand & didn't read it. And I tried to do a workaround for them the next time I visited it. The workaround worked with one nurse but not with the other.
I think some of my problems on Tuesday were with me wanting to get my phone mid eye exam to get to the cochlear app (on my phone) to readjust my programming on my cochlear processor because of the (silly stupid) student nurse who actually took it off to put my glasses back on because I took them off to cleaning them because they had steamed up mid eye exam.
I had explained before I took my glasses off I said my eyes had steamed up I cannot see the eye chart, the main nurse kept saying put them back on, put them back on, taking no notice that I needed to clean the condensation off. And the student nurse came over to put my glasses back on and took them out of my hands while I am still cleaning the condensation off to put them back on my head, but the cochlear processor was in the way so she took it off and disconnected it from the magnet in my head. And I'm saying to the student nurse... don't don't... it is going to need reprogramming... It was total chaos.
I am trying to connect my cochlear processor at the same time as trying to take my glasses back off again because they've steamed up again. And all the while the main nurse was getting crosser and crosser with me.
But I'm explaining if the magnet has been off my head too long and it needs reprogramming and I need my phone out of my bag, & the main nurse went ballistic saying I can't use my phone or whatever she was saying (because I could not hear a blooming thing because the processor was disconnected) and I am trying to explain that the cochlear processor remote is in my phone and I have no way of connecting the processor to the right levels to hear without the remote on my phone...no one understood a thing... they just saw a batty old lady who was determined to use her phone to make a call in the middle of an eye exam.
And I think that was what was reported to the specialist doctor who came in furious at the end literally expelling me from his clinic.
I cannot think of any other reason for his absolute horrendous behavior to me.
So I need a completely different kind of information card. I have never been in this situation with absolutely no understanding what so ever and blatant disregard for what I am trying to tell them, they just saw what they wanted to see a batty old lady wanting to make a phone call halfway through her eye exam, and told the specialist eye doctor that. He would have no reason to disbelieve them and expelled me from his clinic.
I have to make sure this situation never arises again. Also depending on the reply from PALS/PACT I might escalate this to a formal complaint. I didn't intend to, but writing in detail the above experience with the nurse and the student nurse, it is absolutely appalling. I was trying to forget it.
So while I am writing this I am thinking that the cover picture for the card includes 'my cochlear processor and magnet and an arrow to my mobile phone and an arrow back from my mobile phone to the cochlear processor' as a visual thing to explain that the mobile phone is integral to the cochlear processor.
I am also thinking just now, of writing to the head of the cochlear implant team, because I think there will be a black mark on my medical result records of this total misunderstanding of events which puts me in a very bad light.
This was only meant to be a short reply but I was thinking and working out stuff in my head as I'm replying to you.
You said "Though why caring for the patient seems so secondary is beyond my understanding". I completely agree.
I hope you have a good day.