Do You Class Yourself As A) Reversed B) In Remission C) Controlled D) Other And Why

[geefull]

Hi @Debandez

personally, like quite a few others who have replied, I prefer 'controlled' because it implies the fluid requirement to keep going with the work and monitoring rather than a fixed state.

I suppose if we have lowered our HbA1c out of diabetic territory, 'reversed' is correct to an extent but it has a fixed feel about it (to me), which doesn't carry the element of effort which is still needed to keep it that way.

'In remission' is a more medical/technical terminology since it is used for other medical conditions too but, once again, it feels a bit more static to me than 'controlled' does.

Oof - sorry, sounds like I swallowed the dictionary for breakfast instead of buttery scrambled eggs

 

[Hiitsme]

I just feel confused. Food doesn't seem to have that much effect on bloods but stress does. GP says always diabetic but he did consider it "excellent control". I would love to come off the diabetic register.

 

[Rachox]

I just feel confused. Food doesn't seem to have that much effect on bloods but stress does. GP says always diabetic but he did consider it "excellent control". I would love to come off the diabetic register.

In my opinion no one diagnosed with diabetes should come off the diabetic register however good their results. You’d miss out on all the automatic recalls for checks like, blood, eyes and feet.

 

[Crocodile]

Yes they are! Back to pre diabetic levels and will know tonight if I have either gone up or back down to non diabetic levels

How about that. I'm off to the sawbones right now to find out my latest. Have a good one.
Glenn

 

[Deleted Account]

D) other. My type 1 diabetes (please don’t forget when you post in Diabetes discussion this is a mixed forum not just type 2) is Managed. It is as possible to be fully in control of my diabetes as it is to be fully in control of a 3 year old but we try our best and, most of the time it/they behave.

 

[PenguinMum]

My understanding of Diabetes is it is a metabolic disorder and that cannot be changed. However like so many on this forum I eat very low carb and have managed to control my BG numbers. BUT I am only one bad meal away from the danger zone. So I choose to control it. I had a heated discussion with my foot health practitioner who insists Diabetes can be cured by losing weight and eating well (open to interpretation). So long winded Deb but CONTROL all the way for me plus I get the regular checks I am entitled to.

 

[ickihun]

I'm classing myself as in remission as my last hba1c was 41. Its in the 'normal' range (under 42). I would not class it as that if it was over 41 though.

As far as im aware Professor Roy Taylor, Dr David unwin and virta health define reversed/remission as sub 48.

I'm just wondering what others class themselves as.

Work in progress!
Been in better condition. Had much better control.

That's life!

 

[ickihun]

My understanding of Diabetes is it is a metabolic disorder and that cannot be changed. However like so many on this forum I eat very low carb and have managed to control my BG numbers. BUT I am only one bad meal away from the danger zone. So I choose to control it. I had a heated discussion with my foot health practitioner who insists Diabetes can be cured by losing weight and eating well (open to interpretation). So long winded Deb but CONTROL all the way for me plus I get the regular checks I am entitled to.

Many with prediabetes having bariatric surgery are 'cured'.

 

[PenguinMum]

Many with prediabetes having bariatric surgery are 'cured'.

Didnt know that....still learning.

 

[ickihun]

I call myself well controlled. My A1c has been in the normal range for 6 years (currently 34/5.3%) however, all I need to do to prove I'm still Type 2 is eat more than about 35g of carbs or eat starchy food like rice to discover myself hitting numbers that horrify me. If I control my carbs, I control my Type 2.

Totally agree.
Some type2s can have better control on low carb eating.
Shame not a cure for all, eh!!!

Just another tool... like meds, to fight this thing with.

I will always know deep down that we are missing something. Like I was about low carbing, I guess.
Low carbing is one key to unlock our healthy management but.........
The cure is still missing. One day it will be found.
I had great results on diet tablets but heart wasn't protected.
If they can come up with a one which doesnt damage any of the organs, I would have been interested. Victoza was promised to me after childbearing but it was useless, for me.

At least with bariatric surgery. It's guaranteed to alter the metabolism.

 

[ickihun]

Didnt know that....still learning.

Me too.
If I had prediabetes I'd be singing right now at the thought of getting rid of my diabetes. However due to being a long term type2 my chance of getting rid of it is far slimmer.
However, I'm going to give it my all. You never know I might be one of those statistics that are so low in number that it never gets mentioned.
I live in hope!!!

 

[ickihun]

I just feel confused. Food doesn't seem to have that much effect on bloods but stress does. GP says always diabetic but he did consider it "excellent control". I would love to come off the diabetic register.

High carb foods rocket my bloods. Stress is manageable too.
Have you asked your diabetic team for the psychological help I got? They are fantastic!!! A huge difference to my stress levels.
They helped me keep level headed and not obsessed either way.


Now thou surgeon needs me to focus on more weight loss but due to no metformin added 2st. Very very bad timing.
I wish i could force metformin to work. Its just not up to me. My body has other ideas. Ps. Menopause starting.... No periods now. Weight gain, weight gain.
Argh!!!!!
Its taken over a year to just get to meet surgeon. Neither wonder I had to stop being 100% focused throughout. I would have cracked up.

 

[Mr_Pot]

Hi @Debandez

Definitely ‘controlled’ for me. HbA1c down to 31 from 108 but even the slightest whiff of anything other than very low carb sends my BG soaring so I wouldn’t even use the term remission (which I agree does imply a temporary rather than permanent status) as clearly the underlying problem is still very much there. Requires constant vigilance, especially if I want to remain medication free - and I do!

If you have an oral glucose tolerance test then you have to prepare by eating carbs for a while before the test. This is because on a low carb diet your pancreas is not "used" to producing insulin. So maybe the high bg would only be temporary until your pancreas had adjusted. You can experiment if you want to, I am not going to. ☺

 

[Antje77]

Well controlled
Non diabetic numbers, but as long as getting them is a lot of work I'm still diabetic. And besides, I need insulin to get those nice numbers.

 

[JohnEGreen]

I had for a while deluded myself into thinking of my self as a T2 in remission . Whereas I was a drug induced T3E diabetic with good control until a simple change in my dosage of prednisolone threw that control in to a little turmoil though regaining some measure of control now, so now I believe I cannot regard my self as being in remission even though I have been getting low numbers and a normal HbA1c as as long as I am taking preds I will have a problem with carbs and blood sugars.And any change in meds will alter my diabetic profile.

 

[Hiitsme]

High carb foods rocket my bloods. Stress is manageable too.
Have you asked your diabetic team for the psychological help I got? They are fantastic!!! A huge difference to my stress levels.
They helped me keep level headed and not obsessed either way.


Now thou surgeon needs me to focus on more weight loss but due to no metformin added 2st. Very very bad timing.
I wish i could force metformin to work. Its just not up to me. My body has other ideas. Ps. Menopause starting.... No periods now. Weight gain, weight gain.
Argh!!!!!
Its taken over a year to just get to meet surgeon. Neither wonder I had to stop being 100% focused throughout. I would have cracked up.

What diabetic team? Yes I do get an HbA1c done, only once last year. The stress is not of my making or in any way under my control. The nurse was amazed that my HbA1c had only risen by one point from 35 to 36. She would have expected a lot higher considering what is happening.

I'm sorry @ickihun that you are going through such a hard time and do hope that things improve for you soon.

 

[Hiitsme]

In my opinion no one diagnosed with diabetes should come off the diabetic register however good their results. You’d miss out on all the automatic recalls for checks like, blood, eyes and feet.

That is why I want to come off the register.

 

[Goonergal]

You can experiment if you want to, I am not going to. ☺

Nor am I!

 

[MKD75]

How about that. I'm off to the sawbones right now to find out my latest. Have a good one.
Glenn

Went from 47 to 49. Not horrendous but not good I spose.

 

[DCUKMod]

@Rachox - Do you actually know of anyone who has actually lost their annual A1c and retinopathy screening as a result of coming off the register?

Please don't think I'm being confrontational, I'm not, but I read lots anecdotally of people losing thise services, but I can't think of one personal I have personally seen say it has actually happened to them, as opposed to fearing it will appen.

Having been off the register quite some time, I still have an annual A1c and rretinopaathy screening. In fact, my agreeing to the annual A1c was something my GP was extremely keen on.