That's okay
@Cumberland
Thank you.
The only medicine in your list I have tried is Amitriptyline. That might work for up to 5 minutes and then the pains return, and then that is worse than not using anything at all at that moment in time.
I did find something from Holland & Barrett some years ago that worked for peripheral neuropathy in my toes and feet. It was called 5-HTP. It was a powder in a capsule. It worked really well. I used it every night. But, one-day when I opened the bottle, the capsules were not there, they had now changed it to tiny white pills. It didn't work any more. I have no idea if they had changed the composition of it, but I imagine they must have done to make it into a tablet. I was bitterly disappointed. It was worse having found something that worked then having that taken away so to speak. It would have been better to have never found it in the first place because I had been given hope with that 5-HTP. I did try it from other sources, but none worked.
In the past I have worn flip flops in winter in snow because the cold killed the bad pain, and I have got out of bed at night just to stand in snow in my bare feet to kill that really bad neuropathy pain. That that is how bad the pain is. However, when the feet 'warm' up again from the cold freezing snow, that also hurts a lot, but that is a different kind of pain to the peripheral neuropathy. But I don't advise doing that. I was desperate for relief from the peripheral neuropathy. I don't do this now.
What do I do now? I accept it, accept that peripheral neuropathic pain. It is still there as much as ever before. I do use that Coleman's mustard I mentioned before. It does take some of the pain away. But the pain comes back after awhile. And that is more debilitating, because again that is worse than accepting the pain in the first place.
I agree, peripheral neuropathy is one of the worst pains you can have. Unless you are experiencing it, no one else can truly understand the intensity of it.
I am sorry, but I had to tell you about the person who had their feet amputated, and still continued to feel the peripheral pain as phantom pain. I realise you probably didn't want to know that.
No you don't sound hopeless. I can understand the desperation.
And the dark places you must visit in your mind because of it.
I think altering your state of mind is key to helping with the peripheral neuropathic pain. It doesn't mean you won't still have the naughty words moments (and the rest), but will help to a better mindset.
I have to admit if someone had suggested in the same words as I am trying to suggest to you in the above paragraph, then I would have given them short shrift. But I have reached that conclusion through my own efforts.
I hope you can find something of help and value you can take away from the psychiatrist you are seeing.
