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DO YOU WANT TO JOIN ME TO MAKE A CHANGE TO CURRENT GUIDELINES?

Discussion in 'Ask A Question' started by Debandez, Oct 7, 2019.

  1. annmaried

    annmaried · Member

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    Yes I’m new to diagnosis Type 2 about 4 months ago and have got more info on here than from my GP or nurse. All the reasons stated make sense, would help me take control if I had a monitor but no advice given other than carbs are bad. Anyway I would be happy to sign, send, contact March!! if needed
     
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  2. DCUKMod

    DCUKMod I reversed my Type 2 · Master
    Staff Member Administrator

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    The point I am making is that not all health care professionals recommend DUK. I have no challenge that yours did, but mine did not, and discussion with others'; both at my local DUK group and in groups containing T2 from a wider geographical area, are that many Doctors do not recommend the internet.

    Not everyone has the same experience, and even if they did, not everyone will take the same action, based on generally similar information.

    I still contest, based on member numbers, that "most are told of DUK". It is my firm belief that most are advised not to visit the internet, due to the quantum of information and the often conflicting nature of it.

    In terms of your final point on engaging in your locale. I would encourage anyone to engage in whatever way they can in their locale. If everyone waited until they were the "real deal, perfect diabetic", there'd be nobody out there.

    To be honest, some of my greatest learnings, both with diabetes and life in general, have come from mistakes I have made, or blind alleyways I have frustratingly explored.

    Finally, if you visit the NHS App Store, the DCUK Low Carb Programme is there, approved by the NHS and available on prescription from GPs. For the life of me, I can't find anything there bearing anything like the DUK logo.

    Different people, and groups do things in different ways.
     
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  3. DCUKMod

    DCUKMod I reversed my Type 2 · Master
    Staff Member Administrator

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    One place seems easier to find than others. Can you guess which is which?

    upload_2019-10-10_21-59-44.png upload_2019-10-10_22-0-39.png
     
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  4. Listlad

    Listlad Prediabetes · BANNED

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    That’s where the disconnect is.
     
  5. DeeAitch

    DeeAitch Type 2 · Active Member

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    I’d like more support nutritionally, whilst not ‘poor’ £14.99 a month for a diet plan is a bit more than I’d like to commit to on a regular basis, so I think the NHS could provide say a years worth of diet plan to the newly diagnosed, as whilst I’ve been given charts etc. Translating into a meal plan can me daunting & I feel somewhat unsupported by my GP
     
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  6. bulkbiker

    bulkbiker Type 2 · Oracle

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    Maybe check out www.dietdoctor.com loads of free content?
     
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  7. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    How good would this be. Libres are complete genius. I absolutely love mine. Today's graph. Breakfast a mushroom omelette, lunch a choc n nut bar, dinner out with an old friend chicken in a stilton sauce served with veg and a glass of red. Graphs, estimated a1c, averages, daily patterns time in target, daily graph and much more. They wont be able to get away with it for much longer with technology like this..and technology is only going to get better
     

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  8. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    I was asked by the pr team if I could
    Agree totally and this is exactly why I'm manic on social media, doing every PR opportunity that comes my way, doing talks to whoever's wants me and whoever will listen, running clinics at my gp surgery for pts that WANT help. Currently working on ITV/BBC (local) to come and film me in one of my sessions. I will be frantically waving a bs monitor around and @Rachox brilliant blood glucose monitoring leaflet shouting how important it is to test. Sadly I wasn't allowed to take it onto the This Morning interview due to 'time constraints'.

    Every little helps.

    Since I was dx dec 17 I feel things have heated up on lchf working to control bs. It feels like a snowball growing in speed and size. With technology advancing rapidly they wont be able to ignore us for much longer. The libre sensor is a game changer.
     
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  9. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    Yes yes yes! Brilliant. I love more than anything Googling a solution and finding it on YouTube and watching it unfold before my eyes. I think this is a great idea. A 'how to test' video, including general hints and tips. Link it here and youtube. @DCUKMod might advise on if this could be done?
     
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  10. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    Getting there. @Rachox did bg leaflet and I did this for surgeries to hand out. Vetted by HCPs so had to develop with caution and hold back on fats etc but could work on it.
     

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  11. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    Libre sensor. Dr unwin did a banana test. His bs spiked to over 10.
     
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  12. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    Once i got to grips with what foods I could and couldn't eat I tested less so costs went down. Costly to provide to start but maybe NHS fund for 3 month period maybe. Better than nothing.
     
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  13. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    The truth will out in the end.
     
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  14. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    It certainly provides unquestionable evidence.
     
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  15. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    I feel the same. I know little about DUK other than the booklets I received at dx were all from DUK. The website which I have been testing all month has every path leading to starchy carbs, even the path 'preventing type 2 diabetes' and 'low carb' info and recipes. Of course every page has a donate button. DUK and DCUK appear at opposite ends of the spectrum. I'm so mad I've tweeted a PM to DUK questioning their advice and received this:

    'Hi Debra. The information we provide is based on the most up to date and credible evidence. We also take into account that everybody has different dietary and nutritional needs according to their diabetes type, medical conditions and lifestyle and would always recommend consulting a dietitian for specific advice. Our information comes from our clinical team in conjunction with senior clinical advisors. You can read our nutrition guidelines here: https://t.co/VzAOb6S6lL You can also read our low-carb position statement here: https://t.co/HjwrA69hRc We hope this answers your query, but do get back in touch if we can be of any further help'

    Of course I did get back in touch. I didnt spare the horses. My 'case' has now been escalated to a complaint case so looking forward to seeing where this takes me!
     
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  16. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    Hi, forum open to any type and everyone welcome.

    Thank you for this! Wow that is brilliant....do you have any more info please?
     
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  17. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    I have a friend, dx at the same time as me. Chose a different path. He sees what I've done, I share so much info on my social media. But he openly says.' I like my food too much so will just take the meds' rarely tests. I explained that meds just act as mop and bucket and you need to stop the leak. But its fallen on deaf ears. Hba1c on the way up. DN not happy. He has had so many kidney problems (hospitalised twice) skin issues that are driving him mad and other things I suspect are associated with his t2d but he insists on his weekly blow out Chinese and bottle of red Saturday. Pizzas, chips, currys, rice, potatoes.

    He thinks meds are a cure.

    Education is key. More emphasis on complications. Confirm meds only help with sugar a little and certainly dont sort out the t2d. Only way to do that is to change woe

    Emphasise testing essential to gain good control and only way indeed to confirm what you can and can't eat. But when testing is instantly dismissed as pointless and 'only makes you obsessive' it makes you feel there is no point. Hba1c is apparently the only important number. The fact its must an a erage and doesnt capture peaks (which cause the complications) is not important. And when you are given leaflets confirming you can eat a balanced diet and nothing is out of bounds (page 19 my DUK booklet) and pointed to website that is full of rubbish (food and info!) Then is it any wonder we have an.epidemic growing by the second.
     
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  18. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    To be given the choice. That's the top and bottom of it.
     
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  19. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    At least you got carbs are bad! Blimey I nearly fell off my chair reading that. Were you given the usual DUK booklets and offered the DESMOND course?
     
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  20. Debandez

    Debandez Type 2 (in remission!) · Well-Known Member

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    There is a great link to food and recipe thread here:

    https://www.diabetes.co.uk/forum/threads/what-have-you-eaten-today.75781/unread

    This is a great book on offer for £6 here (click.n collect available) plus 25% discount code on site.

    https://www.theworks.co.uk/?gclid=C...9EALw_wcB&q=The Diabetes Weight-Loss Cookbook

    Great visuals here:
    https://phcuk.org/sugar/
     
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