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- 10
So I'm type 2, have been for some time. I'm on Metformin, empfaglifosin and humalin insulin twice a day.
The practice nurse apparently keeps having discussions with people about me but doesn't include me! I only know my latest 2 hba1c readings as I signed up for patient access.
I've recently been told they're happy even though my hba1c is 61. I'm not as I'm still getting too many highs and that isn't the recommended target.
So I have self funded a libre and miaomiao2 to get a better idea of my readings.
I've attached a graph of my most recent readings and as you can see it's not great. Nightscout graph is http://jireson.synology.me:32781/
I never see anyone but the nurse practitioner and get the opinion she just fobs me off...
Shes repeatedly told me she's talking to a retired gp for advise.
I was taken off exenatide and put on trulicity on maximal dose without the smaller start dose at the same time as empfaglifosin. I ended up suffering with Tachycardia. Due to starting both they didn't know what caused it (even though it's listed as a side effect for trulicity). So after months and months I'm back on empfaglifosin without trulicity. My medical record still has notes I had an adverse impact to empfaglifosin rather than trulicity though!
I have to guess at adjusting my insulin dose regularly to lower highs and not get lows (which I figure you shouldn't do on long acting insulin). Some days I have to inject up to 300units others 60 or less.
They still haven't put me back on the exenatide which did work and helped with my weight!
I'm reading that I should be seeing a specialist diabetic nurse, go and the diabetic team on a regular basis as a diabetic on insulin.
I'm up for anything, I'm wondering if I should perhaps be on a mixed insulin or a basal/ bolus regime
So do I ask to be referred to the specialist diabetic team based out of the hospital. Do I change doctors?
I'd love to get some thoughts please. Thank you.
The practice nurse apparently keeps having discussions with people about me but doesn't include me! I only know my latest 2 hba1c readings as I signed up for patient access.
I've recently been told they're happy even though my hba1c is 61. I'm not as I'm still getting too many highs and that isn't the recommended target.
So I have self funded a libre and miaomiao2 to get a better idea of my readings.
I've attached a graph of my most recent readings and as you can see it's not great. Nightscout graph is http://jireson.synology.me:32781/
I never see anyone but the nurse practitioner and get the opinion she just fobs me off...
Shes repeatedly told me she's talking to a retired gp for advise.
I was taken off exenatide and put on trulicity on maximal dose without the smaller start dose at the same time as empfaglifosin. I ended up suffering with Tachycardia. Due to starting both they didn't know what caused it (even though it's listed as a side effect for trulicity). So after months and months I'm back on empfaglifosin without trulicity. My medical record still has notes I had an adverse impact to empfaglifosin rather than trulicity though!
I have to guess at adjusting my insulin dose regularly to lower highs and not get lows (which I figure you shouldn't do on long acting insulin). Some days I have to inject up to 300units others 60 or less.
They still haven't put me back on the exenatide which did work and helped with my weight!
I'm reading that I should be seeing a specialist diabetic nurse, go and the diabetic team on a regular basis as a diabetic on insulin.
I'm up for anything, I'm wondering if I should perhaps be on a mixed insulin or a basal/ bolus regime
So do I ask to be referred to the specialist diabetic team based out of the hospital. Do I change doctors?
I'd love to get some thoughts please. Thank you.