Ricky said:
I live in Southport and would love to know of a GP who recognises what I have been doing successfully for years. I have got my BS down to normal levels and the only time I realise that I really am still diabetic is when I get a bad cold or flu when my blood sugar goes up and nothing will bring it down until the illness goes away!! My doctor's practice still issues me with testing strips after 6 or 7 years on a repeat prescription which is how I keep tabs on what is going on with my body. I haven't had an HB1AC for about 3 or 4 years and am not going near the doctors in case my testing strips are stopped!!!
I am newly diagnosed Type 2, following a routine health check at the doctors, when my blood sugar showed at 19.4! Had had no indications /symptoms and this came as a complete shock! There was no discussion about diet/exercise and was given a prescription for metmorfin and glimepiride and an appointment with the Diabetic nurse for one months time. Left the surgery in tears, with the prospect of over a month in 'no mans land' without advice or support. Got my act together and started researching around and of course one of the first things I found were these forums from which I gained information and started my knowledge gathering! Began to feel angry about the blase way in which I felt I had been treated and so insisted on an appointment with a G.P. which I got the following week. Saw G.P. - told her that I didn't want to take medication (I hadn't started them) until I had tried with diet first (actually to quote the words on both medication, they both state that 'these have been prescribed because diet/exercise have failed!' Told the G.P. I wanted to try diet first, her response was that it was the policy of their practice to put EVERYBODY straight onto medication, even those who are pre-diabetic. Told G.P. I had been following the Newcastle Diet (found on this forum) for about a week and had borrowed a meter from a friend who has one (and whose GP practice have always readily given strips etc on prescription). I had been recording results and even though it had only been a week they were consistently between 5.4 and 9. She showed no interest whatsoever, and dismissed everything I said, insisting that I should take the medication and follow a 'healthy diet' - even though I had not been given any advice as to what a 'healthy diet' is! So I then asked if I could have a meter and she refused stating that the Trust will not allow them to be given (even though my friend is with a G.P practice in the same Trust!). She said that the meters themselves are not expensive, but the strips are very costly! So, even though I live on a very very limited income (I made the decision to leave work as a Social worker to care for my elderly parents who are 89 and 80 and frail and I don't want them to have to go into a care home!) of carers allowance/income support which gives me a total income of just £105 per week, and have bought my own testing kit. I need to do this because it is very important for me to keep track on my bg - as of course it is for every diagnosed diabetic!! I am going to see the Diabetic Nurse this week and am going to fight my corner and argue about the meters and if necessary will go through the route of complaining, both through the G.P. practice, P.A.L.S and the Trust - until I get some sort of resolution.
The reason for my rant and anger at this whole situation is that this attitude towards testing strips results in situations like Ricky - who are not going to see their G.P. in case the testing strips are stopped - which of course means that risks are increased - which is absolutely appalling! Personally, I see the testing as a vital and integral part in managing my diabetes and working towards reducing my BS through diet and exercise before I go down the meds route. Obviously if diet/exercise fails, then I would have no hesitation in going onto meds - but am not being given that opportunity!! I have always lived life with the philosophy of I would rather try and fail, than not to try and never know!! But Ricky - I am worried about you not going for checks because of the fear of testing strips being stopped - which could potentially put you at higher risk.
Incidentally, I have continued with the Newcastle Diet now for 3 weeks, have lost weight (particularly the fat around my trunk!) and my bloods remain at around 7, so even though it is early days, I am pleased with results so far. Of course, I am aware that this type of diet is not sustainable over a long period (I will do it for the 8 weeks as specified) but then I will probably go onto the low carb diet. It will be even more important then to be able to monitor my BS so I will fight them all the way!!!
In essence, I feel very strongly that this is a totally erroneous and dangerous stance being made by the NHS/Doctors as presumably a way to save money!! As far as my G.P. is concerned, my first question is whether this is a guidance from the Trust or a Directive. I am thinking it is guidance, as I know that other G.P's in the same Trust are still prescribing strips. Guidance therefore is simply that - and is interpreted differently by each GP practice. But all diabetics need to rise up and challenge if this ridiculous and potentially dangerous stance on prescribing strips is to stop!!