Type 1 Idiopathic Postprandial Syndrome (IPS)

[PaulusP]

Hello

Is there anyone here who has Idiopathic postprandial syndrome?

I've been having a weak feeling in my thighs for five weeks. The feeling is the same kind of feeling when I have low blood sugar (maybe not as bad). My thighs feel weak, but they are not actually weak - I can do everything normally.

This started one night. I woke up in the morning and felt that I have low blood sugar. I went to get some juice and I went back to bed and just then checked my blood sugar - it was 10 mmol/l. That day, the symptoms were the worst - my arms felt weak as well and I had a hungry feeling. Every day since that day, I've felt vague weakness in my thighs and it's not constant, but it happens every day and *every morning*.

I had this kind of feeling a year ago but it only lasted for a week.

I have anxiety, but I had a good period before the symptoms above started.
I don't know if this has anything to do with this, but before the symptoms, I was in a semi-big calorie deficit and I went to the gym six days a week because I wanted to lose weight.

My questions are:

Do you have the IPS?
How did it start?
Do you have the symptoms in the morning?
Could this be something else than the IPS?

You can tell me everything you know since there are very little amount of information in the internet - especially in my language (Finnish).

 

[EllieM]

Hi @PaulusP and welcome to the forums.

Can I confirm something? Do you have T1 diabetes and are you on insulin for it?

I thought that Idiopathic postprandial syndrome was associated with feelings of hypoglycemia at normal blood sugar and not necessarily associated with T1.

 

[PaulusP]

Hi @PaulusP and welcome to the forums.

Can I confirm something? Do you have T1 diabetes and are you on insulin for it?

I thought that Idiopathic postprandial syndrome was associated with feelings of hypoglycemia at normal blood sugar and not necessarily associated with T1.

Yes, I have T1 and I use insulin for it.

I saw a thread someone made about this topic and I thought it might be associated with T1.

 

[EllieM]

I saw a thread someone made about this topic and I thought it might be associated with T1.

I was just checking because it might also fit in with the reactive hypoglycemia members, but I've not heard of them having T1. You could have a look at that forum (they get low blood sugar after meals and control by reducing carbs) but I don't honestly think that this sounds like the same thing...

Sorry I couldn't help, hopefully someone else will post with suggestions.

 

[PaulusP]

I was just checking because it might also fit in with the reactive hypoglycemia members, but I've not heard of them having T1. You could have a look at that forum (they get low blood sugar after meals and control by reducing carbs) but I don't honestly think that this sounds like the same thing...

Sorry I couldn't help, hopefully someone else will post with suggestions.

Yeah, it's not the same because I have this feeling with normal/higher blood sugar as well.

Thanks anyway!

 

[Lamont D]

As I'm RH. And non diabetic. I do know about IPS.
It is usually found in people who have the exact same symptoms as RH but don't go below hypo levels.

There is a thread in RH sub forum.
Have a look at that.
I have not heard that T1s can have this condition. Because it is because it's blood glucose levels that are going up and down that creates the symptoms.

 

[PaulusP]

As I'm RH. And non diabetic. I do know about IPS.
It is usually found in people who have the exact same symptoms as RH but don't go below hypo levels.

There is a thread in RH sub forum.
Have a look at that.
I have not heard that T1s can have this condition. Because it is because it's blood glucose levels that are going up and down that creates the symptoms.

Hmm, but I have these symptoms with normal or higher blood sugar levels.

"Because it's blood glucose levels that are going up and down that creates the symptoms."
^ But doesn't this happen especially with diabetics? Or what do you mean?

 

[Lamont D]

When you eat, your blood glucose levels go up and and return to normal, if you are non diabetic.
With RH, what you eat is important because any carbs will raise your blood glucose levels higher than norm due to a weak insulin response. This high level is a trigger for the body to react with too much insulin, due to the excess insulin response that
drives your blood glucose levels down into hypoglycaemia. You treat it as a diabetic and what happens is the scenario of every time you eat , drink or have something that is carb laden, you go hyper than hypo all the time.
It is these symptoms as you describe that is very similar to RH.
If you have IPS, these are the symptoms you get without going hypo.
A lot of T2s have similar symptoms when they have a sugar crash or a quick drop in blood glucose levels.

That is why I say, T1 and IPS don't usually go together.
Are you sure you have IPS?
Maybe @EllieM or @Antje77 can help you with trying to understand your situation.

Take care.
Did you read the thread in the RH forum on IPS.

 

[EllieM]

@PaulusP
Hmm, I'm wondering if this has anything to do with diabetes at all? Have you talked to your GP about it? Do you have an official diagnosis?

Things I would try in your position
1) Keep a very close eye on my bgs round the period when the condition occurs to see if they are eg linked to a preceding spike? (Can you get access to a continuous glucose monitor for a while?)
2) Keep a food diary to see if I could find links to food types
3) Get checked out properly by a GP to see if there are any factors such as vitamin deficiencies etc.