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New diagnosis and worried

Discussion in 'Newly Diagnosed' started by PJH2903, Dec 13, 2018.

  1. PJH2903

    PJH2903 · Newbie

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    I suffer from angina and had some bloods done 2 weeks ago as part of my annual cardic review. At my clinic appointment the nurse said that some of my bloods were raised and they needed to repeat them. I had further bloods taken yesterday and today I had a call from the surgery to tell me that they had the blood results and they confirm I have diabetes and they needed to make me an appointment to see the practice nurse. The earliest appointment they can offer me is 28th January!!
    After some prompting the receptionist who called me reluctantly told me that my HbA1c was 68 (don’t know how high this is compared to normal) she said there was not a doctor or nurse available to talk to me on the phone, I have asked them to call me back but I don’t know when that will be.
    I am now worried as I have no idea what to do over Christmas as far as diet etc. is concerned. Is there any diabetes numbers I can call for advice until I see someone at the doctors?
    Thanks
     
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  2. Boo1979

    Boo1979 Other · Well-Known Member

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    Hi and welcome
    Hba1c is a measure of the amount of sugar in your blood over the previous 3 months or so
    The diabetic range starts at 48 while 42-47 is classed as prediabetic - some peoples hba1c is over 100 on diagnosis
    Best thing to do diet wise IMO is 1) to avoid high carbohydrate foods replacing them with lower carb options 2) get yourself a blood glucose testing meter with test strips ( NHS are unlikely to provide one) and use it to find out what diffent foods do tou your personal blood sugars.
    Your GP will almost certainly be following this
    https://www.nice.org.uk/guidance/ng28
    Heres some more information
    https://www.diabetesdaily.com/learn...s-diet/how-to-start-a-low-carb-diabetes-diet/
    https://realmealrevolution.com/banting-green-list/
    https://www.diabetes.org.uk/guide-to-diabetes/managing-your-diabetes/hba1c
    https://www.diabetes.co.uk/blood-glucose/eat-to-your-meter.html
    https://www.dietdoctor.com/low-carb
    http://spirit-healthcare.co.uk/blood-glucose-meters/
     
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    #2 Boo1979, Dec 13, 2018 at 6:27 PM
    Last edited: Dec 13, 2018
  3. xfieldok

    xfieldok Type 2 · Well-Known Member

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    Welcome to the forum, [email protected] for the welcome pack.

    You can get all the information you need from this site.

    Don't panic. Last year I was told to go enjoy Christmas and come back in the new year. My HbA1c was 122!
     
  4. archersuz

    archersuz Type 2 · Well-Known Member

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    Hi and welcome. You will find lots of advice and support here! Firstly I'll tag in @daisy1 who will be along with her really informative post.
    Please don't stress, we can help. I assume you have been diagnosed with T2 and not T1 diabetes? Most of us use the low carb diet to help with our blood sugar levels. There are several websites with useful recipes etc but I'll tag in @Rachox who uses these more than I. I would advise you to buy a blood glucose meter and test your levels before and 2 hours after eating. But again Rachox will provide details of the meters. An HbA1c of 68 is high, but many members started higher than that so don't despair - you should be able to get these levels down. I think you should be offered an appointment before 28th January! Insist you are given a telephone appointment at the very least or make an emergency appointment.
     
  5. Rachox

    Rachox Type 2 (in remission!) · Moderator
    Staff Member

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    Hi @PJH2903 and welcome to the club you didn’t want membership of. If you can’t get an appointment sooner than the one you have, stick around here, we can help you.
    Reducing your carb intake will get you a long way to getting your HbA1c down.
    Here are some links to help:
    https://www.dietdoctor.com/low-carb
    https://realplans.com/ditchthecarbs/?AFFID=337383
    There’s also this sites low carb plan which has a cost but can be prescribed by your GP

    Here are some meters that are popular on the forum:

    Taken from a post by @Bluetit1802 as she wrote it so nicely:


    The most popular meters for self funding T2's are the Codefree and the Tee2 because the strips are much cheaper than other meters, and you need a lot of strips. You can't buy them in pharmacies.


    Try here for the Codefree meter

    http://homehealth-uk.com/product-category/blood-glucose/blood-glucose-monitor/


    and here for the extra strips

    http://homehealth-uk.com/all-products/sd-codefree-test-strips-to-be-used-only-with-the-sd-monitor/


    There are discount codes if you buy in bulk.

    5 packs 264086

    10 packs 975833


    The Tee2 is here

    http://spirit-healthcare.co.uk/product/tee2-plus-blood-glucose-meter/


    Don’t forget to check the box that you have diabetes so you can buy VAT free. (for either meter)
     
  6. JoKalsbeek

    JoKalsbeek Type 2 (in remission!) · Well-Known Member

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    Hi @PJH2903 , and welcome,

    Ah, it's a wonderful time of year to be diagnosed, isn't it? Just like the summer holidays (when I got mine), no-one's around to actually *tell* you anything. Well, I can't tell you whether there are numbers to call, as I'm in the Netherlands, but I've been a T2 for little over 2 years. And I got my bloodsugars under control. And they were worse than yours. (They shouldn't be over 42)

    I'm guessing that means there's hope for you yet! ;)

    So, what's going on? Well, as a T2, you're insulin resistant. You make a whole lot of insulin, but it doesn't quite do what it's supposed to anymore. As it happens, almost all carbohydrates turn to glucose once ingested, and glucose is what you can't process out anymore, not effectively anyway. So if you cut carbs, it's quite likely you'll be reducing your bloodglucose will be closer to the normal range by the time someone has time to see you about this. That means no straight sugar, obviously, but also no potatoes, bread, pasta, rice, cereal, and fruit, save for berries, avocado and tomatoes: those are fine. What you're left with? Above-ground veggies, meat, fish, poultry, butter, nuts, eggs, cheese, full fat greek yoghurt, extra dark chocolate, olives... I know that puts a dent in your christmas dinner (and mine), but there's still loads left!

    Meals could look like this:
    Full fat greek yoghurt with nuts, coconut shavings, a couple of berries.
    Eggs with bacon, cheese, high meat content sausages, tomatoes, mushrooms.
    Omelet with Erythritol, cream and cinnamon, with some coconut shavings and berries on the side.
    Salad with a can of tuna (in oil, not brine) avocado, olives, capers and mayo.
    Salad with lukewarm goat's cheese and a nice vinaigrette
    Meat/fish with veggies. Cauliflower rice is rediculously versatile, and goes well with cheese and bacon.

    It's called a Low Carb/High Fat diet. I don't know where you are weight-wise, but a lot of us (90% of T2's) are more or less obese. It's the carbs we can't handle, and their resulting glucose that gets stored in fatcells. It's not dietary fat that makes us big. On this diet, eating bacon once or twice a day, I lost 25 kilo's, could ditch my diabetes medication and my statins, improved my non-alcoholic fatty liver disease (which my endo said couldn't be done), and a whole bunch of other things, like rheumatism and food intolerances. I got more perks than I bargained for on this diet, obviously.

    I don't know if you've been put on meds or left hanging until January, but if they did perscribe, be sure it's not a med that can cause hypo's, because your bloodsugars will drop on a diet like I just mentioned. In any case, you need to get yourself a meter. They're not usually funded for T2's who don't use certain meds or insulin, but it is invaluable if you want to know how you're doing. If you test before eating and 2 hours after the first bite, you'll see exactly what your meal meant. If it went up more than 2.0 mmol/l, the meal was carbier than you could process back out again. The credo is "eat to your meter", and it really does help.

    I don't know what a typical christmas meal is for you, but if you can skip the pudding and just demolish a turkey or roast, that'd be perfect. The bird/beef would be good for you.

    All in all... Loads of people here have been in your shoes. And you can decide where to go from here, like the rest of us did. Some are diet-only controlled, like me. Others need a little extra help in the form of metformin, gliclazide or other drugs, or insulin. Then there are those who go for insulin. I do advise you to take diet under consideratuon though, either on its own or in combination with meds, because T2 is a progressive disease IF you don't tackle diet. If you add a change in what you eat, T2 can be reversed. Meaning you'll still be a T2, so if you eat lots of carbs it'll still adversely affect your bloodsugars, but if you are in the normal range, you can avoid progression and complications you really want to dodge, especially as you already have angina.

    If you have any questions, ask them here, there's usually someone around who knows something.

    Again, welcome!
    Jo
     
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  7. Phoenix55

    Phoenix55 Prediabetes · Well-Known Member

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    Welcome @PJH2903 I can add little to the comprehensive advice you have received from the previous contributors. Try not to worry too much, it is not good for blood glucose levels, as a type 2 we get hit if we worry, so try to relax, start making small changes. A little more concentrated exercise ( I mean walking or other light exercise sufficient to raise your heartrate), cutting down on the carbohydrates in your diet. As a treat on Christmas Day some will indulge in a small roast potato or two as a special treat, others will have a double helping of veg. The message is that we are all individuals and find our own way through. Take heart that your GP did not make your appointment 'urgent', which they should do if they were concerned about anything on your bloods. Good luck.
     
    • Informative Informative x 1
  8. PJH2903

    PJH2903 · Newbie

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    Hi all,
    Thanks for the welcome and feedback. Not had a call from the GP or practice nurse so went to speak with the pharmacist this evening when I picked up my repeat angina prescriptions. His thoughts were along the lines of if your GP doesn’t want to see you urgently it can’t be much of a problem, just cut out the sugar in your diet and you will be fine. He would not recommend a meter as it would just cause me to worry and besides diabetes can be cured with the correct diet (his words, not mine). This was from a major chain chemists. I got his name and will be raising this with the chain and with the pharmacists governing body as I think this is the wrong attitude. I’ll leave this a couple of days as at the moment I am just angry at everything that went on yesterday, natural I know, but not the best time to shoot off a complaint.
    Anyway, went to a smaller chemists and got a better reception (turns out the pharmacist is a t1 diabetic) spent about an hour talking with her even though the chemist had closed part way through. My head is still buzzing and I can’t sleep (hence the 3am post) but felt a lot better after speaking with her. She recommended the accu-chek meter and even gave me one for free. She has told me to call in anytime if I have further questions and has also given me the shops email address if I need advice over the Christmas period.
    No prizes for guessing which chemists will be getting my and my families business in the future.
     
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  9. JoKalsbeek

    JoKalsbeek Type 2 (in remission!) · Well-Known Member

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    So glad someone gave actual, proper help when it was needed most. Took me quite a while to find someone who took me seriously and was supportive, and you got 'em on day one. (That is RARE!).


    Cured... More like, be well-controlled, reversed, in remission. Cured doesn't usually happen. Quite a distinction. Ah well; you're here now, and there's a pharmacy that backs you... Count your blessings. (And kick **** if you're still mad after a few days. You're quite entitled!)
     
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  10. daisy1

    daisy1 Type 2 · Legend
    Retired Moderator

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    @PJH2903
    Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful.

    BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

    Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

    A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

    On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

    The role of carbohydrate

    Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

    If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

    The bad news

    Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

    The good news

    People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

    Controlling your carbs

    The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

    There are two approaches to controlling your carbs:
    • Reduce your carbohydrate intake
    • Choose ‘better’ carbohydrates
    Reduce your carbohydrates

    A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

    The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

    Choosing better carbohydrates

    The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

    Read more on carbohydrates and diabetes.

    Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

    Eating what works for you

    Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

    To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

    The blood sugar ranges recommended by NICE are as follows:

    Blood glucose ranges for type 2 diabetes
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 8.5 mmol/l
    Blood glucose ranges for type 1 diabetes (adults)
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 9 mmol/l
    Blood glucose ranges for type 1 diabetes (children)
    • Before meals: 4 to 8 mmol/l
    • 2 hours after meals: under 10 mmol/l
    However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

    Access to blood glucose test strips

    The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
    • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
    • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

    Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

    You may also be interested to read questions to ask at a diabetic clinic.

    Note: This post has been edited from Sue/Ken's post to include up to date information.
    Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

    • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

    • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
     
  11. Resurgam

    Resurgam Type 2 (in remission!) · Expert

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    As a type two a lot of problems can be negated by avoiding the high starch and sugars in a modern diet - which might seem impossible at first as things are so geared up to consuming bread or grain or sugar, potatoes and starchy veges seem to be such a staple but once you start to replace them it soon becomes clear that it is the other things which are the good stuff - why anyone would want to eat roast potatoes when there are so many other things to roast does baffle me a bit.
    I suggest that you start by estimating the amounts of carbs you eat each day, and then either eliminate the high carb ones, or reduce everything carby to half what it was. By the time of your appointment you could be well on your way back to normal numbers. If you do well on the half the carbs you can always cut back again - you should be due another Hba1c test soon after your appointment - so you can see what progress you are making.
     
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