Oh My Word! Feedback Received From My Dn

[Debandez]

That is the sad reality...but there is rampant cognitive dissonance in T2D care. They choose to attribute the failure to the patients. eg patients unable to stick to lifestyle changes...blah blah blah...rather than recognized the failure of their recommended approach.

https://steemit.com/diabetes/@kokho...diabetes-is-rare-except-via-bariatric-surgery

Eat to your meter but they tell us we don't need to test because it can become obsessive. No reason to not encourage it in my view.

 

[Resurgam]

The confusing thing is that my sister was t2d and had bariatric surgery. Her pancreas kicked straight back in and is now completely non diabetic as in no insulin resistance. Still trying to get my head around that.

Was your sister injecting insulin?
For most type twos the pancreas is pumping out insulin, and probably getting hysterical over the BG level as it isn't going down as it should do.

 

[Resurgam]

Hi,

You are so inspirational Debandez. Thank you for being so proactive !

I have written to Jamie too, but alas, no response so I wish you luck. But I am quite positive he will reply to you.

The Brighton Jamie’s have told me they do not have cream there anymore. Strange as I kept up to date with your Birmingham event and obviously they did. I also did some feedback for Jamie’s requesting some sugar free desserts or even a cheese plate. So let me know how you get on. Thanks again.x

The cream was brought in for the occasion - bought by the bucketload I think to judge by the amount supplied per cup.
I took along a flask of coffee and some extra thick cream - the solid stuff, just in case, but I was late arriving after driving around to find parking and then leaving my big bag in the car so I could hurry to the venue. It did mean I could stop and have a drink on the way home, but I usually have a dessertspoonful of cream in my pint mug of coffee - mind you, the coffee I make is a medium roast not the burnt bean type favoured by the high street.

 

[Speedbird]

Ah, thanks Resurgam x

 

[Debandez]

Was your sister injecting insulin?
For most type twos the pancreas is pumping out insulin, and probably getting hysterical over the BG level as it isn't going down as it should do.

No insulin at all.

 

[Debandez]

Hi,

You are so inspirational Debandez. Thank you for being so proactive !

I have written to Jamie too, but alas, no response so I wish you luck. But I am quite positive he will reply to you.

The Brighton Jamie’s have told me they do not have cream there anymore. Strange as I kept up to date with your Birmingham event and obviously they did. I also did some feedback for Jamie’s requesting some sugar free desserts or even a cheese plate. So let me know how you get on. Thanks again.x

Not sure about inspirational. I'm just really really mad! I will keep everyone informed.

 

[Alexandra100]

Eat to your meter but they tell us we don't need to test because it can become obsessive. No reason to not encourage it in my view.

A GP (not one I see regularly, for obvious reasons) told me not to test because it would make my fingers sore.

 

[zand]

It interesting to see the criteria Kraft, Ivor Cummings and others used/use.
Hyperinsulinemia is diabetes in situ, even if our hba1c is within what is considered to be ok in UK. Hba1c with many T2D's is the last parameter to go out of limits when the pancreas has been flogged to its last legs. That is, unless we have genuine low insulin T2D.

D.

Yes I agree and I find it very upsetting that I was putting on weight for years and told the doctors that diets weren't working yet no-one thought to test my insulin levels. I've done so much damage to my body through not low carbing soon enough, yet I couldn't act on something I didn't have knowledge of. So frustrating.

 

[Debandez]

A GP (not one I see regularly, for obvious reasons) told me not to test because it would make my fingers sore.

Not as sore as if you have to have a foot off....or worse!

 

[lucylocket61]

I was told by the DN, a few years ago, that testing would wear my fingertips out and i would need them for later years when i went onto insulin. I cried for about a week a the thought. Then I found you guys : )

 

[Resurgam]

Yes I agree and I find it very upsetting that I was putting on weight for years and told the doctors that diets weren't working yet no-one thought to test my insulin levels. I've done so much damage to my body through not low carbing soon enough, yet I couldn't act on something I didn't have knowledge of. So frustrating.

In my medical notes there is a quote 'says diets do not work' - but I was only ever advised to eat less and eat low fat. I was never given a blood test for blood glucose levels until I was 65 years old.

 

[zand]

In my medical notes there is a quote 'says diets do not work' - but I was only ever advised to eat less and eat low fat. I was never given a blood test for blood glucose levels until I was 65 years old.

And you can't keep reducing the amount of food you eat can you?

 

[caroline_92]

Do you know what, when I get home from my holiday, I’m going to write/email someone at my surgery the same question, ask how many of their Type 2s have reversed/controlled/got into remission, whatever you want to call it. I don’t think there is a Diabetes nurse at our surgery (well I’ve never seen one!). I’ve always seen my GP, there is a GP there who specialises in Diabetes but I was told I could stick with my own GP if I wanted. I’m going to look into the PPG aswell, I feel the need to convert them! I left my GP last time with a copy of Dr Unwins paper which I link above, in post #3, looking forward to seeing him in a couple of months to see what he thought about it.

I think I might do exactly the same!

 

[Resurgam]

And you can't keep reducing the amount of food you eat can you?

At one point I was told to eat 600 calories a day, at a time when I was walking to work and back and doing a job which involved a lot of moving around the factory and lifting heavy sacks. The amount had started, I think at 1200calories, high carb foods, and low fat of course - then when I did not lose weight the calories were reduced down by 200 each month.
I looked like a ghost, and I am usually florid, and at the end of the first week I was weak and dizzy. I was taken home, but that meant that I did not have chance to go shopping, and there was no food in the house - I could have died if not for an icecream van coming around on the Saturday afternoon. I managed to get to the butchers and the greengrocers and I felt so much better eating meat and veges. That was when I started to try to eat low carb.
It is no wonder that my metabolism shuts down if I try to fast.

 

[Debandez]

I think I might do exactly the same!

Great idea. We should place bets! I know where my money is.......

 

[Goonergal]

I have copies of the recipe booklet and inspirational stories booklet ready for my nurse tomorrow. Not seeing her about diabetes, but a chance to see if there’s any interest. Will let you know how it goes.

 

[donnellysdogs]

A PPG should not be used to raise individuals problems with anything... that has to go through the normal complaints channel via the Practice Manager.

Questions to the Practice running and knowledge may be raised at a PPG meeting.

No direct emails to Practice Manager should be done.

As a previous Chairperson of a POG and still at another PPG Practice now, I would suggest conforming to the PPG terms of reference etc that should be in place.

Please note that the GPs have to follow theNHS guidelines and until these change, then Doctors are caught between a rock and a hard place.

Drs do not have time or coding on their systems to log anything with statistics about diets of people.

Please make sure that you recognise the purpose of a PPG before joining.

Guidelines can be found under NAPP on google. National association of patient participation groups.

Dr Unwins Practice is rare and excellent.

Don’t forget that patients like me have been diabetic and slim (T1 though) for well over 30 years and I have never had any questions raised about how I manage my health & weight..... so although a T1, figures and statistics from NHS are not good.

Just as a side example to this....statistics. I asked for statistics after my hubby died aged 51 from all the hospitals in our CCG. I asked how many patients went thru A&E’s and lived or died from AAD. I got details in August this year. For the hospital where my husband died in March-they didn’t record his death at all. There are apparently differences in codings between hospitals, mistakes being made etc. I have asked the Clinical Director to look at this matter too.

The NHS is dreadful at collecting data...

 

[Debandez]

So very sorry to hear about your husband @Donnellysdog. I hope you get some answers from the Clinical Director. It won't bring your husband back but it might help you understand a little more.

Dr Unwins Practice is indeed rare and excellent and we hope his influence rubs off on many other gp's in the not too distant future.

I joined the PPG to help. Whoever I can and whenever I can. I have my first webinar on the 17th Sept and I am looking forward to finding out just how it ticks. I've never done anything like this before so it's a learning curve. Thanks for the info too. I have read the PPG pdf. A key part of the criteria is to encourage patients to take control of their own and their families health which is exactly what I have done and am doing. And I will take the first opportunity to feedback to the practice my results (as I mentioned in my earlier post). Another criteria is organising health promotion events. Birmingham this last weekend was a start for me and again I'm looking forward to feeding details back (and hopefully arranging many more). I felt it was a very positive meeting of like minded individuals who came together to try and help nudge these Drs out from in between the rock and the hard place. It's a mammoth task as we know. Like changing the direction of the Titanic manually. It gives me hope that politicians were caught between a rock and a hard place before women got the vote. Thankfully things moved on but it wasn't an easy road for the Suffragets.

Another criteria, advising the practice of the patient perspective and providing an insight into the responsiveness and quality of services. I feel I can help here.

Regular communication with the patient population. Again I hope to help here, not just fellow diabetics either.

The practice managers email address was highlighted on their website so obviously its there so people can use it, which i did. I just signed my name and added ' member of the PPG' but the PPG addition wasn't necessary. I'm still entitled to get this info from my practice as any one else would be. Email for me is far easier than writing a letter and posting/delivering.

I wasn't complaining at all and hope it didn't come over that way, I was just asking for stats. And my next step would be a step I would take even if I wasn't in the PPG to be honest. I'm hoping my surgery will be responsive and at least listen to what I have to say.

Fingers crossed something good comes out of everyone's efforts so far. It's been amazing.

It's late and time for bed.

Night folks.

 

[carol43]

@Debandez I am hand delivering a request this morning, watch this space.

 

[Debandez]

@Debandez I am hand delivering a request this morning, watch this space.

Where is the 'love' button. Brilliant @carol43.