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Type 2 Life

tina_marie said:
Hope all is going well @ickihun, Ron's not had such a good one. The constant pain and muscle weakness is causing him to have less and less sleep. Tonight not sure what brought it on but he's had to use his G.T.N. spray . He's also been having random nose bleeds. Also all day he's had what he calls brain fog symptom. Ron's now in bed not sure how long that will last. Hope you all had a good bank holiday weekend.
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I've been awake an hour.
Thought I should catch up like I hinted earlier.
I feel more positive about my back, even though he told me I won't get back to where I was before (strong as an ox) he seemed encouraging and feels diabetes is causing alot of my weakness and effect on my body.
He is going to help me strengthen my back, hips/pelvis and legs. I was very wobbly.
He told me it could be alot worse. I told him about swelling in legs and fingers/arms on dihydrocodeine and he was surprised not from pregabalin rather than that. I told him it's settling down the longer I'm on dihydrocodeine.
He wants to get me off/reduce painkillers.

I told him I want to get rid of crutch/stick. He said.. "not yet" or "We'll see". One or the other. I cannot remember word for word.
I'm feeling much more confident with him than other 2 physiotherapist. :)

Ron may have to do what I've been advised. Pace myself. Spoons theory?

Although, mind you senior physio didn't mention fibromyalgia so I didn't either. Not diagnosed anyway.

I'm feeling very upbeat about swimming again. We are there as a family on Friday and hopefully next week twice too.
I love swimming.
He feels swimming is my key to strengthening my body again. ;)
I so miss the freedom in the water.

His advice was to keep on my diabetes to keep me from deteriorating.
I never knew diabetes could cause this. Never!

I now dream of no crutch/stick. :) :) :)
As soon as I have some free money I'm going to go back to r-ala supplements. It was very very useful.

I feel supported..... for a change.
I will thank GP when I see him next.

Throat infection hanging around me and my right ear too. :(
 
JohnnyBaker12021970 said:
Friday 25th May 2018 2:32 pm

Blood sugar:- 9.3 mmol/L.

What I've eaten today:-

3 each one halved Jamaican Bully Beef Sarnies

Made from:-

6 slices of Kingsmill Soft White Bread
1 can of corned beef
1 chopped onion
Finely ground black pepper

I had each sandwich at different times of today plus 6 mugs of decaf instant coffee with Longlife full cream UHT milk and 2 teaspoonfuls of granulated sugar each.
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Why sugar hun?
 
ickihun said:
Why sugar hun?
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I have, my dear @ickihun, in the last few days given up having granulated sugar in my decaffeinated instant coffee, and my Carer bought me some Diet Lemonade from Sainsbury's yesterday and I still have several bottles of no-added-sugar apple and blackcurrant squash in my fridge. All I had to eat yesterday was Jamaican Corned Beef Sandwiches with Raw Onion and Onion Granules and Garlic Pepper. I haven't eaten a decent, home-cooked meal for ages that includes fresh vegetables and lean meat and I really miss my Mum and my Big Sister's cooking. They're both deceased now and I think a lot of the deterioration in my Asperger's Syndrome and Adult ADHD is attributed to their passing away. I'm seeing my care coordinator and a charge psychiatric male nurse to complete my support plan for my referral to assisted-living accommodation today. The FACE assessment has already been completed which includes my safeguarding issues, dodgy associations and some of my depleted coping strategies plus my urinary incontinence and accidental falls. I'm hoping the Panel approve my move to assisted-living accommodation as I'm really struggling. I also gave Max who came round this morning my last beige ten pound note and yesterday my friend Colin I gave a blue five pound note. Now I have a silver ten pence piece to my name.
 
JohnnyBaker12021970 said:
I have, my dear @ickihun, in the last few days given up having granulated sugar in my decaffeinated instant coffee, and my Carer bought me some Diet Lemonade from Sainsbury's yesterday and I still have several bottles of no-added-sugar apple and blackcurrant squash in my fridge. All I had to eat yesterday was Jamaican Corned Beef Sandwiches with Raw Onion and Onion Granules and Garlic Pepper. I haven't eaten a decent, home-cooked meal for ages that includes fresh vegetables and lean meat and I really miss my Mum and my Big Sister's cooking. They're both deceased now and I think a lot of the deterioration in my Asperger's Syndrome and Adult ADHD is attributed to their passing away. I'm seeing my care coordinator and a charge psychiatric male nurse to complete my support plan for my referral to assisted-living accommodation today. The FACE assessment has already been completed which includes my safeguarding issues, dodgy associations and some of my depleted coping strategies plus my urinary incontinence and accidental falls. I'm hoping the Panel approve my move to assisted-living accommodation as I'm really struggling. I also gave Max who came round this morning my last beige ten pound note and yesterday my friend Colin I gave a blue five pound note. Now I have a silver ten pence piece to my name.
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Does your dad get a cooked meal? Maybe pair up for the 2 meals for £10/12 now and again for a catch up and then both getting a hot meal cooked and cleaned up in a friendly sociable surrounding? Or if he cooks ask if you can share the clean up afterwards?
I know what you mean thou.
I was once single and diabetic but had great also single friends and dad who we met up on Sunday days out. We went different places every week. We loved it.
 
Awoken in pain in head and throat. I have some of the boy's lergies. I'm drinking warm drinks to keep throat open and have taken my dihydrocodeine/paracetamol/ibuprofen pain relief early so will need to nap later due to pain. (must give 6-8hrs break in the 24hr of pain relief routine, for kidney health and liver).
I usually drink cold diet lemonade too but cold drinks are off the menu. I cannot remember last time I bought sugar or had a sugary drink. It's just not my routine, any more.
I gave up sugar in tea in 1985, for lent. I consciously stopped all other sugary drinks in 2002.
I use sweeter.
I'm up early but now pain relief has kicked in I'm cross eyed tired. :shy:

Stay positive Johnny.
You will be in better surroundings soon. Of which I don't doubt... you know who :rolleyes:.
He says "ask and you will receive". Remember?
 
ickihun said:
Does your dad get a cooked meal? Maybe pair up for the 2 meals for £10/12 now and again for a catch up and then both getting a hot meal cooked and cleaned up in a friendly sociable surrounding? Or if he cooks ask if you can share the clean up afterwards?
I know what you mean thou.
I was once single and diabetic but had great also single friends and dad who we met up on Sunday days out. We went different places every week. We loved it.
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My poor old 87-year-old North Finchley-living father, my dear friend, @ickihun, is in terrific pain caused by hip degeneration, osteoarthritis and has a mechanical aortic valve in his heart as well as taking Warfarin on a daily basis for which he has regular blood tests to check his Warfarin levels. He also has kidney disease. But as far as I'm aware he doesn't have any mental illnesses or autism spectrum conditions. He is virtually housebound with intervention and support from my nephew, Steven who will be 25 in a few days time. My Dad, in spite of his ailing health, shows impeccable autonomy and does all his own housework, laundry, shopping (on his self-bought mobility scooter), has impeccable organisational skills and has a terrifically-gregarious persona and character. He has, however, had several serious heart attacks and a mini-stroke and has a defibrillator which is a device that shocks the heart and makes it start beating again if he goes into cardiac arrest. He really does love me but he finds, with his congestive heart failure, and type 2 insulin-dependent diabetes mellitus, that the autistic meltdowns and safeguarding issues stress him out and could be "putting another nail in his coffin". He finds my condition stressful and worries himself sick about me. One of the most endearing facets is he's preparing me for a time when he passes away so when he does go to the glory it won't hit me as hard. I am the main beneficiary of his last will and testament but I won't have direct access to my inheritance money. My nephew, Steven, will be the receiver for the money and will be secondary to the trust fund that my Dad has arranged with his solicitor for me. He's not happy with me visiting him in North Finchley at his self-outright bought warden controlled flat because of my germs and bacteria that could contaminate his furnishings and give him potentially unpleasant bacterial infections. He does liaise with my care coordinator and care providers and I believe, if I'm honest, as my next-of-kin, that he's submitted a letter with my history that would support my move to assisted living accommodation.

My fasting blood glucose reading today was 10.3 mmol/L.

Lots of love,

@JohnnyBaker12021970, a sufferer of moderate to severe Asperger's Syndrome with tendencies of Adult ADHD xXx.
 
nomoredonuts said:
And @tina_marie Way back in 1994 I was diagnosed with M.E. after a battery of tests. After diagnosis, I was (like Ron) relieved to at least have a label. The early years was simply never giving in for a single day and focusing on some sort of gentle exercise with plenty of rest. @Angelofthemarches , I too taught in Buckinghamshire - the strain of which may well have brought on the illness. Since then each job I've had (teaching/chef) has eventually brought on minor setbacks.
Bizarrely in recent years after T2, I have had boundless energy, I'm able to garden all day, drive to Barcelona, walk for three hours round Cornwall and generally assume I've moved past M.E.
Hoping to inspire both of you. xx (manly hug for Ron).
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Yes I think the strain of teaching may have helped trigger my illness. I've done nursing and teaching and I found teaching far more stressful, though it was in F.E. with more challenging students, i would say.
 
Ron has rung Derby hospital today to get more information on his next appointment. All the letter says is rehabilitation. He will be seeing a physio and also getting help with sleeping . Two years ago I told a neurologist that Ron needed physio he disagreed and said that pain clinic could help him more . Pain clinic discharged Ron at the beginning of May yet were still waiting for his discharge letter and instructions to gp on medication.
 
tina_marie said:
Ron has rung Derby hospital today to get more information on his next appointment. All the letter says is rehabilitation. He will be seeing a physio and also getting help with sleeping . Two years ago I told a neurologist that Ron needed physio he disagreed and said that pain clinic could help him more . Pain clinic discharged Ron at the beginning of May yet were still waiting for his discharge letter and instructions to gp on medication.
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I'm back to see physio in July but he said his books are jammed pack'd.
More diabetics..... maybe?
My last 2 physios didn't have a clue. This one does, thankfully.
 
Morning all

@JohnnyBaker12021970 I hope you get your assisted living placement sorted soon.
I hope everyone else that's having troubles at the moment get various appointments sorted.

I fell down the stairs last night, no lasting ill affects just a sore knee, sore hand & dented pride :rolleyes:
 
heh said:
Morning all

@JohnnyBaker12021970 I hope you get your assisted living placement sorted soon.
I hope everyone else that's having troubles at the moment get various appointments sorted.

I fell down the stairs last night, no lasting ill affects just a sore knee, sore hand & dented pride :rolleyes:
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I'm so sorry to hear of your accident, @heh, my dear friend. It must have shaken you up, just like my accident did on Sunday 15th April this year when I damaged my intercostal muscles below my rib cage on the right-hand side of my body.

I'll be very happy to get to move to my supported housing. It goes to Panel very soon and the mental health workers Vanessa and Tony will be putting a good case for me.

I have an appointment about my urinary/urge incontinence at Guy's Hospital, London, on Wednesday 5th September 2018 at 10:10am to find out why I'm wetting the bed and leaking so much.

I ate a bowl of popcorn whilst watching the latest Star Wars movie this afternoon.

Lots of love, @JohnBaker12021970, a sufferer of Asperger's Syndrome, Adult ADHD and Insulin-resistant type 2 diabetes mellitus.
 
JohnBaker12021970 said:
I'm so sorry to hear of your accident, @heh, my dear friend. It must have shaken you up
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I'm ok, my hand hurt a bit this morning but ok now. Had a busy day at work today and I'm going in tomorrow morning to catch up then tomorrow afternoon we are having a barbecue with the family if the weather is good.
 
heh said:
I'm ok, my hand hurt a bit this morning but ok now. Had a busy day at work today and I'm going in tomorrow morning to catch up then tomorrow afternoon we are having a barbecue with the family if the weather is good.
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I'm so pleased you're not too badly hurt apart from your poor hand and other injuries that you sustained plus your being in a state of shock. I'm praying for you. My computer died on me yesterday, none of the home keys on the qwerty keyboard work so I'm back at my library using a public computer to log on to DCUK. I'm still thinking of you all, especially yourself, @ickihun, @eldergarth, @tina_marie, @13lizanne and @nomoredonuts. Thank you for being my friends and always showing beautiful caringness for me. I love this Forum, I'm really going to miss not having a functional computer in my flat.

Lots of love,

@JohnnyBaker12021970, a sufferer of Asperger's Syndrome, Adult ADHD and Insulin-Resistant Type II Diabetes Mellitus xXx.
 
JohnnyBaker12021970 said:
I'm so pleased you're not too badly hurt apart from your poor hand and other injuries that you sustained plus your being in a state of shock.
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Thank you, no sore bits now and to be honest it made me laugh when I did it cos I felt such a d..khead :facepalm:
 
heh said:
Can you replace the keyboard, they are not very expensive.
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My friend Steve that lives near to me said that I can buy a USB keyboard that will plug into the USB Port of my Chromebook. I'm going to check it out. My mate Steve said I can pick one up for peanuts.
 
I had two pieces of Black Pudding between two slices of Toast with Lurpak butter for my breakfast.
 
JohnnyBaker12021970 said:
My friend Steve that lives near to me said that I can buy a USB keyboard that will plug into the USB Port of my Chromebook. I'm going to check it out. My mate Steve said I can pick one up for peanuts.
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He's right ... a separate USB k/b is cheap as chips
 
Morning all

Off to hospital with Alan (OH) this morning; he's having a CT colonoscopy as he's been having tummy troubles. He has diverticular disease so hopefully just a problem with that and nothing worse. He's had to starve since Saturday evening and is very tired this morning.

We're not due at the hospital until 10.30 so no rush for me this morning.
 
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