Newly diagnosed 4 weeks ago

Lisa1066

Newbie
Messages
4
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi,

I was diagnosed type 2 four weeks ago. My hba1c was 78 then 2 weeks later 76. I was put on metformin straight away but I am struggling to tolerate this. I was also diagnosed with high cholesterol and high blood pressure and my gp was reluctant to start treatment for either of these as being diabetic “is a lot to cope with” and he said one thing at a time as I have other health issues too.

If my diabetes is not controlled using metformin I’m worried that I will be on a trail and error kind of treatment until I find something that works for me, my GP has little faith in my controlling it with diet although I have only seen him twice.

Any help, advice, encouragement is greatly appreciated.

Thank you,
Lisa
 

urbanracer

Expert
Retired Moderator
Messages
5,187
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Not being able to eat as many chocolate digestives as I used to.
Hi @Lisa1066

Take it easy - a lot of forum members will tell you that GP's don't really have a clue about managing diabetes through diet. That's because most GP's simply promote the standard NHS eat well plate which doesn't work all that well for T2's

There will be some T2's along soon to offer advice about carbohydrates and I'll ask @daisy1 to give you the newbies info.

Good luck and welcome to the forums!
 
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Bluetit1802

Legend
Messages
25,216
Type of diabetes
Treatment type
Diet only
Hi,

I was diagnosed type 2 four weeks ago. My hba1c was 78 then 2 weeks later 76. I was put on metformin straight away but I am struggling to tolerate this. I was also diagnosed with high cholesterol and high blood pressure and my gp was reluctant to start treatment for either of these as being diabetic “is a lot to cope with” and he said one thing at a time as I have other health issues too.

If my diabetes is not controlled using metformin I’m worried that I will be on a trail and error kind of treatment until I find something that works for me, my GP has little faith in my controlling it with diet although I have only seen him twice.

Any help, advice, encouragement is greatly appreciated.

Thank you,
Lisa

Hello Lisa and welcome,

First of all, you can't control high blood sugars with Metformin. It helps, but only by a small amount. It is a mild drug. Diet is the key, and this means learning which foods your body can tolerate. The food group that will raise blood glucose levels is carbohydrate because all carbs turn to sugar once inside the system, and that includes the wholemeal varieties. Fats do not raise glucose levels at all, and protein will only raise them a small amount in certain circumstances. It's therefore a very good plan to reduce carbohydrate consumption.

You may also find that eating too many carbs may have been the cause of your high cholesterol.

I think your first job is to buy a blood glucose meter. This will help and guide you in your food choices (alongside a food diary). By testing in a structured way you will learn which particular foods affect your levels the most, and we can help show you how best to do this.

Your second job is to ask for a print out of your test results (or if in England, ask how to register for these on-line). You need a full record of your glucose tests and also cholesterol, lipids, kidney and liver functions. If you don't understand them, again we can help you.

Have a good read round, and ask any questions.
 

jayney27

Well-Known Member
Messages
1,643
Type of diabetes
Treatment type
Diet only
Hi,

I was diagnosed type 2 four weeks ago. My hba1c was 78 then 2 weeks later 76. I was put on metformin straight away but I am struggling to tolerate this. I was also diagnosed with high cholesterol and high blood pressure and my gp was reluctant to start treatment for either of these as being diabetic “is a lot to cope with” and he said one thing at a time as I have other health issues too.

If my diabetes is not controlled using metformin I’m worried that I will be on a trail and error kind of treatment until I find something that works for me, my GP has little faith in my controlling it with diet although I have only seen him twice.

Any help, advice, encouragement is greatly appreciated.

Thank you,
Lisa
Hi and welcome,
I agree with the other comment here, the NHS standard advice is to eat a well balanced diet, try to exercise and reduce weight. I started with this advice until I found this site and the diet doctor website. What I read made sense to me and when I looked at the carb values of lots of the foods deemed healthy and well balanced I was quite shocked. They soon got taken out of my diet completely or replaced with the lowest carb version I could find. Luckily I didn’t have any other health worries and both my blood pressure and cholesterol were under the recommended levels.
In brief I was diagnosed in October last year and was given a chance to see what I could achieve with diet, no meds. I had my first checkup in February. Results are now prediabetic, blood pressure and cholesterol slightly lower than they were and I’m now 3 stone lighter. When I saw the diabetic nurse she was totally amazed, she asked what I’d done and when I mentioned low carb she smiled and said “yes, they can be bad for diabetics”!
You will find lots of help and advice here and will see that many of us have had great successes, good luck
 

Rachox

Oracle
Retired Moderator
Messages
15,916
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
Hi Lisa and welcome! I’m glad your GP hasn’t jumped in with medication for your high BP and cholesterol yet as it maybe these will improve by getting your blood sugars under control. My HbA1c on diagnosis last May was 70 and using Metformin, low carb eating and self monitoring it’s now non diabetic. During this time my BP has reduced enough to come off one of my BP meds and my cholesterol after initially getting worse is now improving again :)
As for the Metformin you could ask to switch to the slow release version which is often tolerated better.
 

Lisa1066

Newbie
Messages
4
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Thank you everyone for the advice!

I am still waiting to see the diabetic nurse and I was told by my gp that I should go on the DESMOND course. I was told I shouldn’t check my blood sugar but everyone I have spoken to said I should do otherwise how else will I know if I’m doing the right thing?

Thanks, Lisa
 

Rachox

Oracle
Retired Moderator
Messages
15,916
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
Thank you everyone for the advice!

I am still waiting to see the diabetic nurse and I was told by my gp that I should go on the DESMOND course. I was told I shouldn’t check my blood sugar but everyone I have spoken to said I should do otherwise how else will I know if I’m doing the right thing?

Thanks, Lisa

Take what the Desmond course says with a pinch of salt (or your preferred seasoning!) they will probably push the Eatwell Plate.
As regards to testing you’ve hit the nail on the head, it’s no good working blind. It’s all down to money, if GPs recommend testing they would have to provide testing kit on prescription. All very short sighted of course as controlled diabetics will cost the NHS less in the long term.
 
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Bluetit1802

Legend
Messages
25,216
Type of diabetes
Treatment type
Diet only
Thank you everyone for the advice!

I am still waiting to see the diabetic nurse and I was told by my gp that I should go on the DESMOND course. I was told I shouldn’t check my blood sugar but everyone I have spoken to said I should do otherwise how else will I know if I’m doing the right thing?

Thanks, Lisa

Your doctor is wrong about testing, and you are right - how else would you know if you were on the wrong track? If you are going to buy one the most popular meters for self funding T2's are the Codefree and the Tee2 because the strips are much cheaper than other meters, and you need a lot of strips. You can't buy them in pharmacies.

Try here for the Codefree meter
http://homehealth-uk.com/product-category/blood-glucose/blood-glucose-monitor/

and here for the extra strips
http://homehealth-uk.com/all-products/sd-codefree-test-strips-to-be-used-only-with-the-sd-monitor/

There are discount codes if you buy in bulk.
5 packs 264086
10 packs 975833

The Tee2 is here and the meter is free.
http://spirit-healthcare.co.uk/product/tee2-blood-glucose-meter/

Don’t forget to check the box that you have diabetes so you can buy VAT free. (for either meter)
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Lisa1066

Hello Lisa and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

Daibell

Master
Messages
12,653
Type of diabetes
LADA
Treatment type
Insulin
Hi. I agree with the posts so far. I wish I had bought a meter when I was first diagnosed. Yes, go low-carb and ask the GP to change your Metformin the much kinder Slow Release (SR) version. Find out what your blood pressure is and be prepared to buy and use your own BP measuring kit and use it in the peace of your home. My nurse is quite happy to record a series of my readings, average them and put them on the system; they tend to be lower as they avoid the white coat effect. Cholesterol readings are only of real use if they are taken as a fasting blood test and the breakdown used to work out the ratios. The total isn't of much use. Ask for the breakdown and a new test when you have your next HBA1C.
 

Rachox

Oracle
Retired Moderator
Messages
15,916
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
Hi. I agree with the posts so far. I wish I had bought a meter when I was first diagnosed. Yes, go low-carb and ask the GP to change your Metformin the much kinder Slow Release (SR) version. Find out what your blood pressure is and be prepared to buy and use your own BP measuring kit and use it in the peace of your home. My nurse is quite happy to record a series of my readings, average them and put them on the system; they tend to be lower as they avoid the white coat effect. Cholesterol readings are only of real use if they are taken as a fasting blood test and the breakdown used to work out the ratios. The total isn't of much use. Ask for the breakdown and a new test when you have your next HBA1C.

I agree about White Coat Syndrome, my GP is now happy to adjust my meds according to an average of home readings that I take for a week leading up to my appts. Home BP machines aren’t very costly, I just updated mine and it cost around £20
 

Lisa1066

Newbie
Messages
4
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Thank you everyone, I really appreciate all the help. I’d be lying if I said that I wasn’t struggling, I’m finding it so hard to adjust. I have a lot of other health issues - I have a heart condition and a pacemaker, a chronic condition with my hips which requires a lot of pain medicine including morphine. Im sure I’ll adjust to being diabetic but I am going to get an appt with my GP because I am struggling on metformin.
 
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Resurgam

Expert
Messages
9,868
Type of diabetes
Treatment type
Diet only
I have total faith in controlling type two diabetes with diet.
I just done't have a problem any more.
Tonight's dinner is roast beef with mushrooms and courgettes and a bowl of salad.
I seem to be able to manage on that and similar meals, and get normal results. If I feel hungry then some berries and extra thick cream will sort it out.
 

Alexandra100

Well-Known Member
Messages
3,742
Type of diabetes
Prediabetes
Treatment type
Tablets (oral)
I am struggling on metformin.
I'm not sure if you mean that Metformin gives you digestive problems, as it does many people? If so, did your doctor start you on the smallest possible dose? Starting with a higher dose is asking for trouble. Also, do you take Metformin with a meal? If you mean that you are struggling to control your bg despite taking Metformin, lowering the carbs in your diet should help lower your bg. Metformin does help a lot of people, but not as much as changing diet.
 

Lisa1066

Newbie
Messages
4
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi,

Yes my GP started me on 1 x 500 for 2 weeks and then said if I am okay with that then to double it and this is when the problems started with my stomach but he said I need to go up even higher and said if I stayed on it and persevered the side effects will go away but I really don’t think I can increase it anymore I feel so sick.

I do take 2 x 500 with a meal and I am changing my diet.

Thanks for the help
 

Resurgam

Expert
Messages
9,868
Type of diabetes
Treatment type
Diet only
If you are eating low carb and your blood glucose is reducing well - do you need Metformin.
It is supposed to be such a great drug - but I would not take it again for a pension. The benefits it is supposed to confer seem so slight and the down side is so debilitating. Being unable to leave the house or even go downstairs prevents taking any exercise or even enjoying life.
 

daisyduck

Well-Known Member
Messages
988
Type of diabetes
Type 2
Treatment type
Diet only
Hi,

Yes my GP started me on 1 x 500 for 2 weeks and then said if I am okay with that then to double it and this is when the problems started with my stomach but he said I need to go up even higher and said if I stayed on it and persevered the side effects will go away but I really don’t think I can increase it anymore I feel so sick.

I do take 2 x 500 with a meal and I am changing my diet.

Thanks for the help

I persevered for 11 weeks as I was told Metformin would benefit me. I had headaches, nausea and bowel issues ! Lots of people take Met with no problems.. I'm not one of them.
 

JoKalsbeek

Expert
Messages
5,982
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
Metformin was hell for me, and in the Netherlands we didn't have slow release at the time of diagnosis. (I think it's just out, or about to be.). It might be an idea for you...? They put me on gliclazide instead, but I could come off that a few months later when it turned out a low-carb diet/lifestyle worked perfectly fine. (Everyone told me I wouldn't be able to do it. It's been a year and a half now and I'll never go back to "regular" eating!) In spite of common bloodsugar-raisers like stress (cat fell ill and died), the flu and the like, my last HbA1c was still 38, which was quite the surprise. My cholesterol came down some too because of it, enough so I don't have to wrestle anyone over statins; the rheumatism is bad enough without those messing with my joints. Diet can do a whole lot, and will very likely affect your other issues in a positive way as well. And you're right, without self-testing you're flying blind. I have to fund my own strips here, but they're well-worth it, with the information and peace of mind they bring. As for struggling, really... I doubt anyone here just shrugged the diagnosis off, so you're very, very much not alone there. It's a lot to take in, especially since there's so much conflicting information out there, most of it coming from people who should be experts.... And turn out not to be. But for me, diabetes was the first health-issue I could have some direct control over... I'm at the mercy of my body almost all the time, except when it comes to diabetes. That I can steer up and down, for the most part. I just had to learn how and to think on my feet. And that takes a little time, admittedly, but you've come to the right place for a crash-course. It took me 3 months or so to figure out a diet that worked for me... With the information here, you'll probably work it out a lot quicker than I did at the time. Good luck!
 

SueJB

Well-Known Member
Messages
3,316
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
cold weather
Hi,

I was diagnosed type 2 four weeks ago. My hba1c was 78 then 2 weeks later 76. I was put on metformin straight away but I am struggling to tolerate this. I was also diagnosed with high cholesterol and high blood pressure and my gp was reluctant to start treatment for either of these as being diabetic “is a lot to cope with” and he said one thing at a time as I have other health issues too.

If my diabetes is not controlled using metformin I’m worried that I will be on a trail and error kind of treatment until I find something that works for me, my GP has little faith in my controlling it with diet although I have only seen him twice.

Any help, advice, encouragement is greatly appreciated.

Thank you,
Lisa
Lisa, welcome. You WILL succeed, do each meal and each day at a time. Little steps and you WILL get there:happy: